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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Lexington, KY

As soon as I get up I am very very tired. I take a nap now. I figure since I am sick and will be 63on July 21st I'm entitled to nap. It helps a little. All day long every day when I am awake I am in pain so I want to be asleep.

July 20, 2024
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Answer Summary

Members shared a common experience of overwhelming fatigue that defines daily life with fibromyalgia, with most describing a pattern of waking... Read more

Members shared a common experience of overwhelming fatigue that defines daily life with fibromyalgia, with most describing a pattern of waking tired, pushing through morning hours, and hitting a wall of exhaustion by early to mid-afternoon. Many members found afternoon naps essential for functioning and managing pain, while others cautioned that excessive sleep can worsen symptoms and advocated for staying active with gentle movement, hobbies, or tasks to prevent muscle atrophy and maintain mobility. A recurring theme was the delicate balance between honoring the body's need for rest and pushing through fatigue to stay engaged.

A MyFibroTeam Member

If you don't use it...you lose it!

July 22, 2024
A MyFibroTeam Member

Of course we are tired all the time! Its a part of this disease. I never ever nap. Instead I always find something to get involved with. Right now I am making sock dolls and plan to deliver them to seniors living in nursing homes. Find a mission of good will and be of service to others. If I nap then I won't sleep at night. I have a diligent routine of waking very early and staying busy till 1pm. Then thats my rest time with watching movies or whatever. I'm terrified of muscle atrophy. The more we stay immobile then our futures are bleek. My 93 yr old mother gave up on exercise when she reached her 80's and now can't walk. I vow to not walk that same path!! Keep your mind and body strong!!

July 21, 2024
A MyFibroTeam Member

I get that!.. it took me a while but I no longer sleep in the day now, I keep going it does help at night as I sleep for longer between my leg pain waking me but I soon Go back off to sleep . Great advice 🥰

July 21, 2024
A MyFibroTeam Member

The more y'all sleep, the more tired you will be. Don't give in to napping!! Push yourself to do something... anything! Organize a drawer. Dust. Rearranged a room. ANYTHING!! Just don't go to sleep!! I've had fibromyalgia for 45 years. In the beginning I gave in to naps, but I learned that the more you sleep, the worse your pain becomes. So instead do easy gentle movements like Tia chi. Bake. Plan a meal. Give yourself a pedicures. Just don't fall asleep.

July 20, 2024
A MyFibroTeam Member

I bet yr totally worn out Carolyne,🥰 love & hugs

July 24, 2024

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