Has Anyone On This Website Been Diagnosed With Both Fibromyalgia And Chronic Fatigue Syndrome? If So How Was This Diagnoses Reached? | MyFibroTeam

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Has Anyone On This Website Been Diagnosed With Both Fibromyalgia And Chronic Fatigue Syndrome? If So How Was This Diagnoses Reached?
A MyFibroTeam Member asked a question 💭
posted March 25, 2023
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A MyFibroTeam Member

I have both cfs and fybro. Had to go back to the doctors and get a bunch of tests to get the cfs diagnosis. The tests were similar to fybro.

The fatigue you feel with cfs is much more than just fybro. Any movement is exhausting and painful.

I was diagnosed with fybro 11 years ago and believe cfs came 9 years ago with the birth of my daughter.

posted March 25, 2023 (edited)
A MyFibroTeam Member

Jodi, I was tested twice more than 5 years apart. Negative the first time. You might want to test from time to time.

Good idea to get a portable washer and dryer if you can afford it. They might have on site laundry facilities. My father had it when he was in care. I did his laundry for him.

posted March 25, 2023
A MyFibroTeam Member

I diagnosed myself with chronic fatigue. In my 30s I started sleeping 12 to 14 hours nightly with a 2 hour nap. The second time I was tested for sleep apnea it was bad enough to get a CPAP machine. By then I was 71. Shortly after getting it I started sleeping 6 to 7 hours nightly usually with no nap. So my sleep is what it was when I was much younger. I wake up refreshed.

posted March 25, 2023
A MyFibroTeam Member

Jodi Holleran & everyone! The difference between Fibromyalgia & Chronic Fatigue Syndrome is: that (CFS) is excessive tiredness. You’re dragging yourself to move, when you haven’t done anything. I was diagnosed by two doctors, after I had COVID the second time. It is extreme tiredness. However, It got better in time. 💜
I had both-but I persevered and the Chronic Fatigue Syndrome got better. I started going for walks and in time, I began to have more energy to do things, again. ❤️

posted March 17 (edited)
A MyFibroTeam Member

My rheumatologist says I have both CFS and Fibro. I have extreme fatigue if I do anything. He stated there is a difference. He went through all of my symptoms and I love that he listened to me. He said I have the symptoms of both and sometimes they go hand in hand. There is no specific test and he states some doctors will say it is depression instead of acknowledging that is its CFS and/or Fibromyalgia. They can cause one to be depressed because we would love to feel like our "normal" selves. However I found this was my new "normal". It takes a good rheumatologist to first really listen to one's symptoms and that we are not exaggerating when we say how exhausted we are and how much we hurt. With fibromyalgia he tested my pressure points which hurt so much that now he says I am not going to do that as I only cause you pain. The chronic fatigue he asks if it is getting worse or about the same. Over the years it has gotten worse. I don't think it will ever get better. When I have the flu I have deep bone pain and drink pedialyte over ice. Now I drink water with some pedialyte in it all the time in my metal cup with my metal straw as the metal straw does not bother my tongue which gets cracked from my Sjorgrens. I also have Lupus SLE and a host of other autoimmune diseases. I always say we all have a lot in common but no two of us are the same. Hugs and prayers. God bless.

posted March 25, 2023

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