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March 25, 2023
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Answer Summary

Members shared their experiences with dual fibromyalgia and chronic fatigue syndrome diagnoses, with several noting that a compassionate... Read more

Members shared their experiences with dual fibromyalgia and chronic fatigue syndrome diagnoses, with several noting that a compassionate rheumatologist who truly listened to their symptoms was key to receiving proper recognition rather than being dismissed as depressed. Many members described the exhaustion of CFS as more debilitating than fibromyalgia alone, making even small movements painful and draining, though some found gradual improvement through pacing themselves and staying gently active with walks and rest breaks. A recurring theme was the challenge of distinguishing between the two conditions, the importance of ruling out other causes like sleep apnea, and the reminder that while many people with fibromyalgia also experience chronic fatigue, each person's combination of symptoms and severity is unique.

A MyFibroTeam Member

Jodi Holleran & everyone! The difference between Fibromyalgia & Chronic Fatigue Syndrome is: that (CFS) is excessive tiredness. You’re dragging yourself to move, when you haven’t done anything. I was diagnosed by two doctors, after I had COVID the second time. It is extreme tiredness. However, It got better in time. 💜
I had both-but I persevered and the Chronic Fatigue Syndrome got better. I started going for walks and in time, I began to have more energy to do things, again. ❤️

March 17, 2024 (edited)
A MyFibroTeam Member

I have both cfs and fybro. Had to go back to the doctors and get a bunch of tests to get the cfs diagnosis. The tests were similar to fybro.

The fatigue you feel with cfs is much more than just fybro. Any movement is exhausting and painful.

I was diagnosed with fybro 11 years ago and believe cfs came 9 years ago with the birth of my daughter.

March 25, 2023 (edited)
A MyFibroTeam Member

Jodi, I was tested twice more than 5 years apart. Negative the first time. You might want to test from time to time.

Good idea to get a portable washer and dryer if you can afford it. They might have on site laundry facilities. My father had it when he was in care. I did his laundry for him.

March 25, 2023
A MyFibroTeam Member

I diagnosed myself with chronic fatigue. In my 30s I started sleeping 12 to 14 hours nightly with a 2 hour nap. The second time I was tested for sleep apnea it was bad enough to get a CPAP machine. By then I was 71. Shortly after getting it I started sleeping 6 to 7 hours nightly usually with no nap. So my sleep is what it was when I was much younger. I wake up refreshed.

March 25, 2023
A MyFibroTeam Member

Myrna2…I hope you’re feeling better. Yes, CFS goes hand in hand with Fibromyalgia for many people. Nonetheless, it important to try and stay active doing things, as best as possible . The inactivity makes things worse.
Of course, taking time to rest. Pacing always, because overdoing things can be counterproductive.
Everyone is different, so if you have other conditions, do what you can. ❤️🦋

June 17, 2024

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