I have all that! Its horrible!

I don’t take any medications, I’m so sensitive to the ones I tried in the past I just thought I would do without. I’ve tried lyrica, gabapentin, amytriptlyn etc. I also have an array of eye drops but unfortunately they make my eyes feel more dry and then even putting them in every 5 minutes doesn’t help so even though I know I should be using them I don’t. The rheumatologist did say if your eyes have been dry for a long time then the nerves sort of stop working, putting in eye drops wakes them up so you feel the dryness more.

@A MyFibroTeam Member

Medications cause dryness of mouth they do with me, also dry eyes are a symptom of Fibromyalgia, you need to buy eye drops that are for dry eyes. I use Orange Juice it helps to calm my throat down from the dryness.
Hope that it will help you out as well.
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A MyFibro...

Well from what I’ve been told on the sjorgens forum which is run by a retired dr who has sjorgens the blood tests don’t rule it out but I also had a lip biopsy which was also negative, they also say that doesn’t rule sjorgens out but the rheumatologist I saw was adamant that it’s a very sensitive tests, despite her telling me before I had it that it’s not 100%. She officially diagnosed me with Sicca syndrome and also suggested fibro. It just seems wierd to me to have both diagnoses but for them to rule sjorgens out. I begged her to try hydroxychloriquine but then doubted myself whether or not this is a wise move.

Have you had a lip biopsy? That is the best test they have got currently.

I chew gum all day (2 flavours) alternating which helps, lemon drops when gum isn’t working, a mouthguard at night seems to help a bit and spray overnight along with biotene toothpaste. There is medication you can get that makes you produce more saliva called pilocarpine and if you are in the states another called cevemiline. It’s supposed to help your eyes also, it does have side effects of possible sweating because it sort of stimulates all those moisture producing receptors, unfortunately for me I’m also having this strange itching, gritty, prickly feeling throughout my whole body and the pilocarpine made it so much worse so I had to stop. A lot of people rate cevemiline more than pilocarpine but it’s not available in the uk.

Hi, I take Effexor XR, Wellbutrin, Trazadone, NovoClonidine, all of these cause dry symptoms. It has been so long taking these meds that I cannot remember having dry symptoms at the time I was diagnosed with Fibro/PTSD. Sorry, all I do is drink lots of water and use eyedrops, constantly.