The fatigue I experience is unlike any other I've ever had. It feels like I weigh a ton and there is a pressure within my chest (not on). My heart rate drops to around 60, I feel dizzy and off balance and just plain weird feeling in my head. Does anyone have anything similar? How would you describe the fatigue?
I get the heaviness feeling you mention but also the feeling that I’m swimming in a pool of
molasses. It hits every muscle in my body along with aches and stiffness. I do various physical therapies everyday that help with making me feel more stable and less dizzy/off-balance but I need to pace myself. I also have CFS so the day after is sometimes the hardest. Pacing and knowing limits are critical. Good diet and hydration also very important to maintain my energy levels. I just try to be careful not to overdue it on good days (or hours) when I have a burst of energy. My reating HR is beteen 55-60 and even after exercising it only gets to 70-75 max. There are studies showing managing your HR to no more than 10-15 beats above reating helps manage energy levels. A positive attitude (along with a strong faith) about life is perhaps the biggest thing to have in all things Fibro.
My fatigue is like the worst flu of my life where I can barely get out of bed. I am more tired when I get up then when I go to bed. I had to push myself through everything I do. I am a type A personality and used to be able to do so much but as the years go by I find my body gets slower and slower even though mentally I want to get so much done. Fatigue beyond fatigue. I drag through each day and everything I do which some days is barely anything. There is no way to describe how bad the fatigue is because I have no words to describe the pure exhaustion and then some.
For me the best way I can describe it is so beyond tired that it's painful. Before fibromyalgia I never would have guessed how much more fatigue was than just being tired. I can manage most days with medication, but Sundays (I think my body realizes that's my only day it can rest since I work Saturdays) sometimes just breathing is painfully exhausting. My head feels like its stuffed full of cotton. Just existing is excruciating and every fiber of my being wants to rest, but when I feel like that somehow I can be too tired to even sleep. Sometimes it's more miserable than the pain to be honest, I know how to cope with the pain but the fatigue is just something else.
For some reason my heart rate actually stays quite high even when I'm fatigued ("normal" for me is around 100, which isn't healthy but I'm not sure what I can do about it. I'm not in bad shape but my heartrate rarely drops below 80 and is more often 90-100, with palpitations up to 120+ for no discernible reason).
I'm just the same.the tiredness has some explanation.i keep thinking it's going to go away I know I have except the pain.but I have not excepted my tiredness.i was Always on the go.i think now people think I'm just lazy. I work all week but I'm so tired so I know what you are going through I could cry some days and no one outside this amazing network understand what it is like..god bless take good care of yourself .
Yes, it's hard to describe the fatigue, as it can vary from day to day. I often say it feels like I've been hit over the head on the days I wake up groggy and very stiff. It feels like you ran a marathon, or hit the gym hard and are now paying for it, only you've done nothing of the sort. I also get the ache within the chest (around the ribs) when I am really shattered. It can feel like a weight is pressing down from above, as if gravity has increased and you have to drag yourself around under it. All those things.
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