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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Chronic Allydonia

A MyFibroTeam Member asked a question 💭
New Plymouth, NZ

Does anyone else suffer with 24/7 all over burning skin pain, I have this pain all over my body, it drives me to sever depression episodes
I trialled the usual meds to try help it, to no avail. And am on tramadol for it now which is helping to make My t quality of life a bit better
Does anyone else have any suggestions on what can be done to ease this pain or even..... Get rid of it....Lol!!!. Dreams are free right lol.
It is one of my biggest symptoms and I've had the chronic skin pain for 4… read more

April 27, 2021
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Answer Summary

Members rallied around someone struggling with constant, full-body burning skin pain (allodynia) that has severely impacted their quality of... Read more

Members rallied around someone struggling with constant, full-body burning skin pain (allodynia) that has severely impacted their quality of life for four years, offering both empathy and a wide range of practical suggestions. Several members recommended topical relief options like lidocaine creams or aloe vera, nerve medications such as gabapentin or Lyrica (though the original poster had tried these without success), low-dose naltrexone (LDN), medical marijuana, heat therapy, and dietary changes including going gluten-free or using apple cider vinegar to balance body pH. A recurring theme was the physical and emotional toll of living with relentless pain, the frustration of trial-and-error treatment, and the powerful sense of solidarity from others who truly understand how debilitating this symptom can be.

A MyFibroTeam Member

I use heated throw and heat pads when i burn. I know it sounds terrible, but it does help me. Also use s cream called NeuroSooth, by Resonant Botanicals. It helps some, doesn’t take it all away. Also use medical marijuana...it really helps me. Hope you can find some relief, burning is so miserable.

April 28, 2021
A MyFibroTeam Member

Get braggs apple cider vinager do a couple tablespoons in a glass of water three time a day turns you more Alkaline plus lots of other healthy benefits just stay close to bathroom for the first week until you get used to it because it will clean you out lol

May 22, 2021
A MyFibroTeam Member

Oh wow thank you for that info, I've had bloods done to check for celiac but it was negative, I do know I react to gluten though and I stear clear of breads pastas etc, but perhaps I need to totally eliminate gluten.

May 2, 2021
A MyFibroTeam Member

I used to feel like my entire skin on my body was burning until I went gluten free when I found out I had Celiac disease. It only comes back if I get contaminated.

May 2, 2021
A MyFibroTeam Member

Maybe a nerve med? Like gabapentin or lyrica?

April 27, 2021

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