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A MyFibroTeam Member asked a question 💭
Enfield NS

I have hot flashes and have no understanding of it. Also when the air is cold my pain will worsen, mind you when I get in my pool which is not heated the cold water gives me a pain free body.(my last swim was two weeks ago, now the pool is frozen)

December 22, 2020
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Answer Summary

Members connected over the confusing experience of hot flashes with fibromyalgia, with many wondering whether their symptoms stemmed from the... Read more

Members connected over the confusing experience of hot flashes with fibromyalgia, with many wondering whether their symptoms stemmed from the condition itself, menopause, or age, and several sharing that their doctors confirmed the hot flashes were fibromyalgia-related rather than hormonal. One member explained that fibromyalgia affects the hypothalamus, which acts like a faulty thermostat and prevents the body from regulating temperature properly, causing sudden shifts between feeling freezing cold and overheated. A recurring theme was the frustration of drenching sweats that feel like stepping out of a shower, the need to go outside in the cold for relief, and the emotional validation of discovering that these bewildering symptoms are shared and understood by others in the community.

A MyFibroTeam Member

I hope someone can explain.
Fibromyalgia is an alarming issue, what I mean is, the effects from the disease is off the wall.
I can only pray, some day, they will be able to say, yes you have Fibromyalgia, it a terrible disease with no cure, know we are working on it.
It is a painful degrading disease, where half the world think it’s all in our heads, while the other half just ignore our issues. Have a great New Year.

December 28, 2020
A MyFibroTeam Member

I get it too, can be freezing cold as usual but then it's like a switch has flicked and I'm melting with the heat. My GP said it's because of my age, I'm 47 but I read somewhere that with fibro it's like you have a faulty thermostat.

December 25, 2020
A MyFibroTeam Member

I assumed the hot flashes and cold flashes were from anxiety. Probably a combination. Ugh.

April 12, 2024
A MyFibroTeam Member

Hot tubs are amazing for relaxing the pain from fibromyalgia. So does massages or anything that can heat the area that hurts. Although massage chairs hurt real bad. I feel bruised all over if i use a massage chair. I will also get pain and spasms from my neck along my spine to my tailbone that feels paralyzing until spasms stop.

December 29, 2020
A MyFibroTeam Member

Thank you for the information. I will be fifty three in a few days, I have had hot flashes for years. My doctor does blood work every four months, only to tell me I am not going thru meta pause, my hot flashes are due to having Fibromyalgia.
I have been researching Fibromyalgia, also gathering information from all of you on our Fibromyalgia Team.
Thank you all for your support and kindness.
I am truly blessed to have all of you to reassure me that it’s not just in my head.
Hope everyone had a wonderful Christmas, mind was good got to visit both my boys and talked to my brothers and sisters over the phone, and went and visited my mom and Dad.
Have a Happy New Year,
Pray for peace and safe travels.
Stay safe, God Bless

December 27, 2020

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