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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Info Do You Rely On?

What Info Do You Rely On?

I've been reading a lot of questions on here about confusing data on covid testing and data. I thought it might be helpful to start a designated thread about it since many of us question whether our symptoms indicate possible exposure and indecision about how to proceed with both our medical appointments and social distancing in terms of exercise.

I'm in the USA but the UK Guardian has been for me, a credible source so my first link will be to them regarding COVID-19 testing and accuracy.

I'd… read more

about 2 years ago (edited)
A MyFibroTeam Member

Hello @A MyFibroTeam Member
Good idea starting this thread!

I rely on myself by reading and watching many different news organizations and looking for articles that are not sensational. I assume there is some truth in each area, but I am concerned that so much is political reporting that I try to be skeptical of the reports. I try to use common sense, and caution at the same time.

For myself, I am mostly interested in the medical and scientific research and community reporting. My family 💟 also has a protocol we follow regardless of what the news says because the experts change their recommendations too often for my liking.

My family of four wear masks, use hand sanitizer, and go only to public places for necessities, and when we do we go at low traffic times.
We quarantine our groceries for three days, we wash groceries going into refrigerator or freezer before putting them away. We review the mail and wash out hands. Incoming shipments of boxes wait three days before use of items.
And we stay with each other without doing our normal summer activities. We talk about risk versus reward as we decide whether to leave the house to do something. We view that each of us are responsible to each other, kind of a "if one of us gets it we will all end up with it". We take mental health seriously.
Medical visits occur with caution, but we do them in person if its necessary, but most of them are telemedicine.

I would like to know from people with fibromyalgia who contracted COVID what having the illness is like? Should I start a different question for that?

about 2 years ago
A MyFibroTeam Member

I live in Canada. I haven’t gone out at all in March,April and May. I was able to start going out in June some and the beginning of July, I always kept my 6 ft distance and wore a mask and use hand sanitizer and wore gloves when I went into stores. Then our cases went down so I still wore my mask and kept my distance of 6 ft. Our cases of Covid 19 are back in the hundreds per day again so back to gloves and more hand sanitizer and masks and 6 ft distances. I think if we all do our part like our Dr and ediemunologist are saying about Covid 19 and what we should be doing to keep ourselves safe and our families and others which in turns protects everyone. This should not be a big deal or be about politics. I also follow my news coverage every day and I also watch CNN to see what’s going on with all our neighbours as this is a concern as well as Canada is to us. We need to keep going forward not backward with this pandemic. I hope we all stay healthy and safe through this pandemic. 💖🌸🌸🦋🦋

about 2 years ago
A MyFibroTeam Member

The Guardian was rated as a credible and relatively unbiased news source. I tend to read across many sources and often use national public radio (online version) as a go to. It is important to know your source, especially with medical news. Just because it looks like news doesn’t mean it is, and just because someone might denounce it doesn’t mean the facts are false.

Common sense giving you willies? Err on the side of caution. Mask up, distance, and say all you have to say with kindness.

about 2 years ago
A MyFibroTeam Member

I read on facebook where a nurse test two swabs before using them and they both show positive. So I personally is not getting the test cause if the swabs test positive wouldn't that give it to people. Something is up with all that.

about 2 years ago
A MyFibroTeam Member

I stay close to home. I will go for drives now and then. Went to a beach where we knew no one was there. Not a public beach. took our doggy and walked along the short beach ,waded a bit and had a great ,safe time.
I see no one! As Mum goes out and has friends in , I do not see her.
Can't go visit . Tough titty said the kitty , but too bad. Better safe than sorry.
The fellow does all the shopping. I put it all away.
I don't really trust all that we hear. As it is conflicting and yup, politics involved.
Stay as healthy as possible. Stay safe. God bless

about 2 years ago

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