If you work: What types of work do you manage to do? What are the accomodations you've had to put in place?
If you don't work: How do you balance life duties with your partner?
Have you found alternate income supports such as Social Assistance?
I created my own business out of something I love (music) promotion country music artists to radio around the world. A phone, my computer and I'm set plus being your own boss, if you need a nap you TAKE one.
I worked full time doing medical records for a pharmacy that services nursing homes. It required me to be at a desk 85% of the time, moving and lifting boxes of forms, bending over printers. I used to have no problem keeping up with my work load and then some. But the last 2 yrs i worked I found myself not being able to keep up and making stupid mistakes. I got to the point I couldnt meet my deadlines. My supervisor tried to tell me it was because I was distracted by phone calls and emails on a personal level when to the contrary I told the family I couldnt talk during the day any longer. After I got called down on it for the 3rd time, I walked out after 24yrs with the same company. I do not regret it one bit. I knew the time was coming and was already working on how to work it out financially at home. That was in 2015. I went back to work with a work at home job this past October. So far it has worked out well. I am at a desk all day but not tied to it. And I have my dogs. They are not service dogs per say but they are to me. This illness is terrible. Its not how i pictured spending my retirement. All our plans went out the window and down a deep hole because I am not physically capable of doing what I want. So once again I have to take a few steps back, think outside the box and regroup.
I work full time (recently cut one shift a week but will be back at five days a week in a couple months when we get busy). I work in an extremely busy deli where we all do a little bit of everything. I am on my feet seven or eight hours a day and always in motion. My boss is very understanding and assigns me tasks that are less physically demanding when I am in more pain. I have been very open with my co-workers about my mental and physical heath problems and most have been really great about picking up a bit of slack if necessary. Some days are harder than others but I find I usually make out ok. It’s when I stop moving after work that most of my pain hits.
I had to leave my job as a PSW in a retirement home when I could no longer meet the physical demands. This job, though still active, has helped me feel somewhat better overall and the lack of heavy lifting was necessary.
@A MyFibroTeam Member. I work 6 hours a day in a gift shop in a hospital. Love it but at times can be hard. When I'm hurting really bad, the girls will cover for me. I too am on social security. Hope that helps you. Hugs, Connie
I'm on disability. I would love to work but can't.