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A MyFibroTeam Member asked a question 💭

If you work: What types of work do you manage to do? What are the accomodations you've had to put in place?
If you don't work: How do you balance life duties with your partner?
Have you found alternate income supports such as Social Assistance?

March 3, 2020
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Answer Summary

Members shared the difficult reality of navigating work with chronic illness, with many on disability after being forced to leave demanding... Read more

Members shared the difficult reality of navigating work with chronic illness, with many on disability after being forced to leave demanding jobs they once loved, including roles as personal support workers, medical records clerks, and hospital nurses. Several members described creative adaptations that have allowed them to continue working, such as transitioning to less physically demanding positions, reducing hours, working from home, creating their own flexible businesses, and relying on understanding coworkers and supervisors who accommodate their needs on difficult days. A recurring theme was the grief of having retirement dreams derailed by illness, balanced with determination to find meaningful work within new limitations and the understanding that rest is not laziness but a necessary part of managing chronic conditions.

A MyFibroTeam Member

I created my own business out of something I love (music) promotion country music artists to radio around the world. A phone, my computer and I'm set plus being your own boss, if you need a nap you TAKE one.

March 4, 2020
A MyFibroTeam Member

I worked full time doing medical records for a pharmacy that services nursing homes. It required me to be at a desk 85% of the time, moving and lifting boxes of forms, bending over printers. I used to have no problem keeping up with my work load and then some. But the last 2 yrs i worked I found myself not being able to keep up and making stupid mistakes. I got to the point I couldnt meet my deadlines. My supervisor tried to tell me it was because I was distracted by phone calls and emails on a personal level when to the contrary I told the family I couldnt talk during the day any longer. After I got called down on it for the 3rd time, I walked out after 24yrs with the same company. I do not regret it one bit. I knew the time was coming and was already working on how to work it out financially at home. That was in 2015. I went back to work with a work at home job this past October. So far it has worked out well. I am at a desk all day but not tied to it. And I have my dogs. They are not service dogs per say but they are to me. This illness is terrible. Its not how i pictured spending my retirement. All our plans went out the window and down a deep hole because I am not physically capable of doing what I want. So once again I have to take a few steps back, think outside the box and regroup.

March 4, 2020
A MyFibroTeam Member

I work full time (recently cut one shift a week but will be back at five days a week in a couple months when we get busy). I work in an extremely busy deli where we all do a little bit of everything. I am on my feet seven or eight hours a day and always in motion. My boss is very understanding and assigns me tasks that are less physically demanding when I am in more pain. I have been very open with my co-workers about my mental and physical heath problems and most have been really great about picking up a bit of slack if necessary. Some days are harder than others but I find I usually make out ok. It’s when I stop moving after work that most of my pain hits.

I had to leave my job as a PSW in a retirement home when I could no longer meet the physical demands. This job, though still active, has helped me feel somewhat better overall and the lack of heavy lifting was necessary.

March 4, 2020
A MyFibroTeam Member

@A MyFibroTeam Member. I work 6 hours a day in a gift shop in a hospital. Love it but at times can be hard. When I'm hurting really bad, the girls will cover for me. I too am on social security. Hope that helps you. Hugs, Connie

March 3, 2020
A MyFibroTeam Member

I'm on disability. I would love to work but can't.

March 3, 2020

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