Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question πŸ’­
Edmonton, AB
February 10, 2020
 · 
Reactions

Answer Summary

Members widely resonated with the question about dizziness, lightheadedness, and nausea, with most attributing these symptoms to medication... Read more

Members widely resonated with the question about dizziness, lightheadedness, and nausea, with most attributing these symptoms to medication side effects or conditions like neurally mediated hypotension and POTS (orthostatic intolerance). Several members shared practical coping strategies, including carrying anti-nausea and migraine medications at all times, increasing salt intake as directed by doctors, using medications like midodrine to manage blood pressure drops, and maintaining a clean diet despite appetite challenges from immunosuppressants. A recurring theme was the unpredictable nature of these symptoms, which can strike suddenly without warning, requiring constant preparedness and self-advocacy to manage daily life.

A MyFibroTeam Member

I had this today at work. I got hot as well.

February 10, 2020
A MyFibroTeam Member

I think it's also called orthostatic intolerance and is also known as POTS. I have never researched if there is a distinction between the names however πŸ™†β€β™€οΈπŸ™‹β€β™€οΈ Hope this helps. Oh, some medications also cause this as well. πŸ₯°πŸ₯°πŸ₯°πŸ€—Hugs

February 10, 2020
A MyFibroTeam Member

PS. here's a screenshot of the definition of neurally mediated hypotension.

February 10, 2020
A MyFibroTeam Member

Yes. I was diagnosed with mediated hypotension 2 decades ago and instructed to consume a "helluva lotta salt." But I was able to get a vasoconstrictor medication called pro amatine, now a generic called mitodrine. I still take it as needed.

February 10, 2020
A MyFibroTeam Member

I do. I now carry anti nausea meds and my migraine meds with me all the time because I never know when it will come. I would ok one minute then next thing you know, it hits me for no reason.

February 13, 2020

Related Questions

View All
A MyFibroTeam Member asked a question πŸ’­
Rugby Warwickshire

A MyFibroTeam Member asked a question πŸ’­
Vassar, MI

A MyFibroTeam Member asked a question πŸ’­
Little Rock, AR