Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Corby, UK

Hi everyone I hope you’re having a good day! 😊 I hope somebody can help me? I really struggle with my fibromyalgia and I work full time in my place of employment we don’t get sick pay I’m also mum to a 13-year-old boy who likes to eat you out of house and home haha has anybody on here successfully claimed PIP for fibromyalgia? with my fibro the anxiety of losing wages makes my symptoms worse and I’m in a vicious circle and I need the security of having an extra income all advice would be… read more

June 13, 2019
 · 
Reactions

Answer Summary

Members rallied around someone asking about claiming Personal Independence Payment (PIP) in the UK for fibromyalgia, with several confirming... Read more

Members rallied around someone asking about claiming Personal Independence Payment (PIP) in the UK for fibromyalgia, with several confirming they had successfully received it or similar benefits like Attendance Allowance, emphasizing the importance of describing worst-day symptoms rather than downplaying struggles. Many members shared frustration with assessors who seemed unaware of how fibromyalgia affects daily life, describing experiences of being made to feel like frauds despite genuine disabilities, and offering practical advice to request home assessments, bring medical documentation and medications, have a supportive partner present, and seek help from Citizens Advice when filling out forms. A recurring theme was the emotional toll of balancing work, financial insecurity without sick pay, and the fear of being judged, met with solidarity and encouragement to be honest about limitations and persist through the difficult process.

A MyFibroTeam Member

One thing I would advise you to do is seek advice from citizens Advice if your not confident in filling in the form your probably better at forms than me I didn’t find it an easy form , think they make it that complicated hoping you give up xx

June 27, 2019
A MyFibroTeam Member

They are watching your every move , the examiner I had was a qualified nurse she had a list of questions that are basically the same that are on the form you complete , she said that I didn’t look like I had fatigue which is not a fair comment on the short time you are there and she said I had good mobility although I walk with a permanent limp she said there is nothing wrong with my memory the questions she asked prompted my memory so this looks like your a fraud , I wasn’t given the chance to explain how Fibromyalgia affects my every day life . Good luck with your assessment ,hopefully you get someone who will be more caring about you , x

June 20, 2019
A MyFibroTeam Member

My sister in law gets PIP for fibromyalgia. Make sure to tell them your worse day. Be prepared for some personal questions. You have more chance if you have medications for it

June 13, 2019
A MyFibroTeam Member

I do, insist on a home assessment, they have to comply, I was told to do this.

A lady came to the house and she even ‘directed’ me to the best answers to give. It was truthful but we tend to underplay it when asked.

June 28, 2019
A MyFibroTeam Member

Hi Hun , I’m keeping everything crossed for you , I know exactly what you’re saying some days is like to much to manage simple stuff , like you I am at work and it’s a right struggle some days are so bad ,the assessor doesn’t see what it’s like day in day out , I’ve had to drop from full time work to 12 hours a week and like you don’t get sick pay , they look at everybody as a non worthy case , like so many people I’ve worked full time for the past 46 years and feel very let down that they are judging you and not seeing the disability and how bad it is , hope your having a good day , take care x

June 27, 2019

Related Questions

View All

PIP

A MyFibroTeam Member asked a question 💭
London, UK

A MyFibroTeam Member asked a question 💭
Staffordshire uk

A MyFibroTeam Member asked a question 💭
Brigham City, UT