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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

PIP

A MyFibroTeam Member asked a question 💭
London, UK

Hi I really need some help having a PIP assessment. Is there anyone in the group has been awarded??? How did it go and did you get awarded just by having Fibromaylia???

August 23, 2017
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Answer Summary

Members shared their experiences navigating the challenging PIP assessment process for fibromyalgia, with many describing intense stress,... Read more

Members shared their experiences navigating the challenging PIP assessment process for fibromyalgia, with many describing intense stress, feeling bullied or interrogated during assessments, and facing denials or reduced benefits despite legitimate need. Several members strongly recommended getting support from Citizens Advice Bureau or Welfare Rights when filling out forms and preparing for assessments, warning that assessors may misrepresent statements or use pressure tactics that can trigger flares and anxiety. A recurring theme was the emotional toll of proving invisible illness to skeptical systems, met with solidarity, prayers, and encouragement to fight for deserved benefits without shame.

A MyFibroTeam Member

@A MyFibroTeam Member I feel your pain. I am so sorry you got so upset. I pray that everything will turn out and you will get your benefits. Rest easy and when that brown envelope comes rip it open with confidence!!! Love and hugs!

August 26, 2017
A MyFibroTeam Member

I know what you mean,I had 3 tribunals in 10 yrs to keep the DLA, now I have developed austio,athritus, and was too old for pip, I don't have so much hassle (sorry dislexic too)

August 24, 2017
A MyFibroTeam Member

I was denied they put you through some weird questions that are designed to make you feel like a big retarded person what a nightmare that was

August 24, 2017
A MyFibroTeam Member

Hi.I really had to fight hard for pip.I used to be on high DLA and low care for years but since PIP its changed.I am now getting middle care and low mobility.I could have appealed again but i just couldnt have coped and the FMS would have increased with all the stress.I had help from Citizens advice beaureu and they were a great help to me.I would suggest that you too get help from Welfare rights or Citizens advice.You need help and support especially to fill in these awful forms. Dont let them at Pip upset you or bully you.Because they will try there damndest to stop you getting it.Its so stressful and the lies they put down about me was just so upsetting and so nasty.Just please be careful what you say and do because they will try to hassle you and put you under pressure.Get help please.

August 23, 2017
A MyFibroTeam Member

@A MyFibroTeam Member I pray everything goes ok, keep me posted please if you dont mind. Godbless you

August 26, 2017

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