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A MyFibroTeam Member asked a question 💭
Stirling, UK

So, I am in the midst of probably the worst flare I’ve had....soreness, fatigue, stiffness etc. I have taken some time off work and I have an appointment at the GP on Wednesday.
I am currently on no medication. I realise that I cannot go on just putting up with this pain. I wonder if you guys have had any success with different medications? Therapies? What should I enquire about?

Thank you xxx

March 17, 2019
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Answer Summary

Members rallied around someone experiencing a severe fibromyalgia flare, sharing a wide range of medications that have helped manage their... Read more

Members rallied around someone experiencing a severe fibromyalgia flare, sharing a wide range of medications that have helped manage their pain, including Lyrica (pregabalin), gabapentin, Cymbalta, low-dose naltrexone, mirtazapine for sleep, CBD oil, and tramadol, though many noted that Lyrica and Cymbalta came with difficult side effects for some. Several members described practical strategies beyond medication, such as eliminating gluten and sugar, trying reiki, pacing activities carefully to avoid overexertion, and one member shared promising results from lidocaine and ketamine infusion therapy that provided several pain-free days. A recurring theme was that finding effective pain relief for fibromyalgia is deeply personal and often involves trial and error, with members emphasizing the importance of working closely with doctors and staying hopeful through the process.

A MyFibroTeam Member

I am trying a new pain therapy at the Allevio clinic in Toronto
It’s a combination of lidocaine and ketamine infusion. It’s given once every two months. The dose is adjusted until it is appropriate for your physiology and relief.
I heard very good things about it and my doctor was enthusiastic about the process. I’ve only had one infusion but OMG! I had four days free of pain. There are side effects it is a big step, but if I can get to the point where it lasts around six or seven weeks, I have a chance at a normal life.
I don’t know if anybody else has tried this ???
Chatting with the others in the room receiving the treatment, several of them indicated they were at the point of being able to go off of their other meds like Lyrica and Cymbalta. Very exciting if this works and I can reduce my overall drug level!

March 17, 2019
A MyFibroTeam Member

I have just started reiki. I am currently taking Vyvanse, which is a stimulant, for the fatigue. I just have to watch that I do not overdo or I pay for it. I have to Pace myself. My friend mentioned Lyrica for fibro nerve pain and said she could not function without it. I am afraid to take it and recently asked my doc about medical marijuana or CBD oil as I have heard it works wonder for fibromyalgia symptoms.
I would research food and beverage fibromyalgia triggers.
Good luck. Try to stay positive!

March 18, 2019
A MyFibroTeam Member

I use 15mg mirtazapine for sleep. It's amazing 😴

March 18, 2019
A MyFibroTeam Member

Thanks for all the replies, guys. Appreciated reading what works and doesn’t work for people! I shall see what they say on Wednesday! Fingers crossed it’s productive! Xxx

March 18, 2019
A MyFibroTeam Member

I take 1 meloxicam during the day and 1 gabapentin at night before bed. I've had alot of pain all day plus very tired. I worked earlier today. 4am to 1 PM. Some days are better than others. I feel like I've been ran over. I have fibromyalgia and arthritis both.

March 17, 2019

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