Anyone else here absolutely fed up with people's responses to your chronic symptoms? Responding with things like: "Why can't you just ignore it?" "I get sick too." "Why don't you try this...?" "It is all in your head." Nothing is more disarming, or infuriating to me.
Yes. The one I dislike most is, "You look so good today, you must be feeling better." What chance do I have to tell them the struggle I had getting there after that? I try hard to ask how are you to someone first. Often they will start talking & and forget about asking you.
@A MyFibroTeam Member
You mentioned people say you don't
have cancer. Well, I have had breast cancer twice. They were no more supportive then. I was supposed 2 b glad it was not worse.
Happily 4 me, my husband is wonderfully supportive. Also, I learned to b grateful for the one true friend who will never let me down. That is Jesus, my Lord. He always understands and gives me peace to keep going.
Hugs to all.
OMG! Recently I had a friend say to me oh you look Normal. How do you respond to that! Do I have to have 3 heads growing out of my neck to confirm that I am suffering. On that day I felt like a Mack Truck slammed into me then I was rolled over by bulldozer with a 104.degree temperature with body chills. I choose not to respond or take offence to these ignorant comments. It has taken me a while but I don't care what people think or say. It's less stressful for me. In an age where if you really want to get info you can Google it. I do explain what fibro is and how it affects me once, after that I pray that God gives them empathy and understanding. Needless to say my friends that visit are few and you know what I'm fine with that.
I already have pulled away from the majority of people I know because of their not understanding me. I'm thinking I'm going to have to eliminate more people. I'm tired of hearing why do I avoid stairs, long walks from my car to anywhere, not replacing light bulbs when they blow, why my house is not as clean as they think it should be. I'm doing everything I can to maintain myself. If I sweep my living room, I have to take a long break before I mop the floor. I have to sit in a chair to do some chores. I had a dimmed light in my bathroom for 4 months. During that time I was always unstable and light-headed on my feet and didn't want to take a chance on a step stool. Finally it went away and I changed the bulb. That really bothered me, but people act like you don't care about taking care of yourself and home. I'm tired of explaining why I avoid stairs, when walking is painful. I'm trying everything I can to go back to work. But right now I have a doctor's appointment 3-4 times a week.
I definitely understand your pain.....I am tired of people comparing this to things like "Well at least you don't have cancer" or things of that nature. I'm well aware of people in worst off situations, but it is not like this is a walk in the park either. I get it!!!!