Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Rogers, AR

Y'all I experience the weirdest things. They are scary and so strange I don't know how to tell anyone. My entire body is buzzing. Every sound, every motion makes me want to faint. My face muscles feel heavy. My tongue feels strange and tired. My lips tingle. What on earth is happening? Is anyone else having these crazy things? And please don't advise me to go to my doc. I've been. They have zero answers.

February 16, 2019
 · 
Reactions

Answer Summary

Members rallied around someone experiencing frightening physical sensations including full-body buzzing, tingling lips, heavy facial muscles,... Read more

Members rallied around someone experiencing frightening physical sensations including full-body buzzing, tingling lips, heavy facial muscles, and sensitivity to sound and motion, with many sharing that they've experienced identical or similar symptoms. Several members suggested practical next steps, including checking vitamin B12, vitamin D, and iron levels, ruling out caffeine sensitivity or food allergies, trying calming techniques like slow breathing and meditation apps, and considering that fibromyalgia and anxiety disorders commonly cause these exact sensations due to hypersensitive nerves and centralized sensitization. A recurring theme was the validation that these terrifying symptoms are real and shared by many in the community, along with encouragement to keep investigating root causes while using tools like heat therapy, rest in dark quiet spaces, and low-dose medications like Cymbalta or clonazepam to manage flare-ups.

A MyFibroTeam Member

Hi again yes they will literally just pop up for no reason at all that's why anxiety and panic disorders are quiet hard to deal with because you assume something needs to happen to feel like you do well no in my experience it just started for no reason I've now learnt to deal with it by learning everything I could about it.. Don't question why it's happening it makes it worse try to go with it breath through.. If it is anxiety I would recommend seeing a professional about it to rule things out though.. In the mean time I hope you feel better soon xx

February 17, 2019
A MyFibroTeam Member

I know that what Iam about to say may not work, but it depends on what kind of day I am having. I have an neck massage with heat to it . I also have a massage for my back, I will take a hot shower or bath.get on one of the machines, and try to relax ur body, and your mind. It want take away the pain,but it will take the edge off.for a while. I had to watch my self to see what trigger.what helps .

February 16, 2019
A MyFibroTeam Member

Im going to chime in here and you can read my page and all abut me and all my CRAZY symptoms. I wont go into too much detail but I'll give you the quick run down, last year, early January I started getting the weird buzzing/humming sensation in my body. It was mainly in my hands and feet and it would run down the arms into the hands and down the ankles into the feet almost like how you would envision electricity running through wires. I have called this sensation "buzzing, humming, bones vibrating or just feeling like I have a current of electricity running through my body. Since taking a very strong dose of vitamin B it seems to have calmed down. My initial ranges were around 400 and I am now at 850. I also take a methlyfolate because I don't methylate vitamins properly. I think this has helped with the buzzing but it does occasionally rear its ugly head and I have kept a long journal trying to find any correlation. Like Vera said, I do notice high anxiety makes it worse so I do have a prescription for clonazepam which helps me tremendously. I actually take 1/2 a tablet almost every day with my vitamins because it helps so much and I work full time. BTW - I have seen 4 neurologists including 2 others that conduct EMGS. So six total. I have had 4 EMGS in 2018 and been tested for everything under the sun. I even went to Mayo Rochester back in May to be seen my a neurologist there where I had my 3rd EMG. They have all said I have some type of centralized sensitization and fibro falls under that category. But basically my nerves are hyper sensitive. This is why some days, I cannot stand to feel the wind blowing through my hair or being in the cold literally makes me HURT all over. My last neurologists said he has heard every description under the sun for people like us and he wasn't shocked at all when I told him about the vibrating. Unfortunately he didn't have many answers other than try an antidepressant. I am now on a very low dose of Cymbalta and it has helped with the depression and anxiety so I can at least say mentally I am managing things better but I still have days where I feel like I am dying. Fibro is a nasty beast and I don't care what anyone says, I think one day doctors will figure out it is autoimmune.

February 20, 2019
A MyFibroTeam Member

Hi Missa,
Crying can help! This illness can cause any symptom at any time in any body and mind part. So may times I just say incredible. It is hard to find words to describe the pain, and weird things that happen to us. There are so many different things to try. Perhaps an allergist may help - I went to one just recently. as I was itchy all over - it was insane. I only found out that I have no allergy. So off to the next part of my research. I also agree with Mary, try to find out if you have a sensitivity to any of your drugs or food.
Hope this helps
Take Care

February 18, 2019
A MyFibroTeam Member

I think maybe as far as the sound and motion go, we are very sensitive to noise and bright lights with fibro so maybe if possible, find a quiet, dark room and lay down when this happens. I know it sounds crazy but it is a true symptom for fibro! The tongue is what I call a fuzzy or burnt tongue and sometimes it’s so bad, I don’t know if I will be able to talk, especially with the brain fog that comes with everything else! I’ve never had the tingling lips however I have seen many people comment on here about the same thing. I guess all I can say is, unfortunately these are all fibro related. Best advice, buy a cheap pair of ear plugs and room darkening curtains! Sometimes a good rest will help! Good luck!

February 17, 2019

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Austin, TX

A MyFibroTeam Member asked a question 💭
Belvedere, UK

A MyFibroTeam Member asked a question 💭
Brisbane, AU

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In