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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 2, 2018
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Answer Summary

Members deeply related to the physical hypersensitivity that comes with fibromyalgia, describing how even everyday sensations like wind,... Read more

Members deeply related to the physical hypersensitivity that comes with fibromyalgia, describing how even everyday sensations like wind, clothing, sheets, or a child's hug can trigger intense nerve pain, often compared to the aching skin that accompanies the flu. Several members shared practical adjustments they've made to manage daily life, including wearing soft leggings or nightgowns, avoiding tight or heavy fabrics, and modifying their clothing choices based on how sensitive their skin feels that day. A recurring theme was the emotional toll of this symptom, especially the heartbreak of not being able to hold grandchildren or accept cuddles from loved ones, balanced by the solidarity and strength found in knowing others truly understand this invisible struggle.

A MyFibroTeam Member

Hyper sensitivity on skin is definitely a fibro symptom. Touch is not always a positive thing to those of us in this type of flare.

December 2, 2018
A MyFibroTeam Member

Everything hurts me. I suffer from migraines an wake every morning with them. I hurt so bad I just want to cry but I can't because I have people who depend on me. I usually I'm just staying at home I'm my soft nightgown. If I go shopping I wear yoga pants an the softest shirt I can find. I've put in jeans an its like my legs are on fire so I have to take them off.

Prayers Claudia an know.you are not alone.

December 3, 2018
A MyFibroTeam Member

Yes, it’s the nerve endings under the skin... Soo sensitive. And outer skin hurts also.. clothes really bother me, and worse in winter

December 2, 2018
A MyFibroTeam Member

I have a hard time with clothing some days, if its too tight I am uncomfortable, too heavy, like thick jeans, its exhausting or more work to walk as well as hurts my skin. If its baggy its more work or seems like it, so i mostly wear leggings or skinny jeans with some soft leggings although some days that is too much, If i have my hair up in ponytail for too long, it hurts when i let my hair down. I usually try to explain it like when you have the flu and your skin is achey to the touch but people still dont seem to get the jist of what I am explaining, which makes me wonder how long I have actually had this.. Cold air hurts, anything cold touching my skin hurts and I feel it for several minutes after... its weird ❤️

December 2, 2018
A MyFibroTeam Member

Yes, all of it. Something to do with the nerve sheath along the top of your skin...

December 2, 2018

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Tring, UK