Answer Summary

Members resonated deeply with the experience of feeling burning hot all over while having ice-cold hands and feet that turn blue, a... Read more

Members resonated deeply with the experience of feeling burning hot all over while having ice-cold hands and feet that turn blue, a frustrating hallmark of fibromyalgia's impaired temperature regulation that many described as a no-win situation. Several members shared practical strategies including wrapping feet in electric blankets, layering socks, taking hot showers or baths, using heating pads, and investigating underlying conditions like Small Fiber Neuropathy, Raynaud's, thyroid issues, or lupus with appropriate testing. A recurring theme was the painful skin sensitivity that makes even light touch feel like a severe sunburn, the added challenge of menopause hot flashes for some, and the comfort of knowing others truly understand this exhausting and isolating symptom.