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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question πŸ’­
Ontario, CA

I was diagnosed a couple of months ago with fibro so I am very new to this and was not Educated about it either.

The symtoms that I experience are :

Burning sensations anywhere on my body , tingling sensations also numbing, I twitch also have muscle spasms , my speach isnt always normal I could be talking then some words come out not even what I am trying to say. Sometimes I lose grip while holding things legs can also give out , memory isnt good at all . I had an episode of bells palsy years… read more

November 2, 2018
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Answer Summary

Members strongly validated someone newly diagnosed with fibromyalgia who was experiencing burning sensations, tingling, numbness, muscle... Read more

Members strongly validated someone newly diagnosed with fibromyalgia who was experiencing burning sensations, tingling, numbness, muscle spasms, speech difficulties, grip issues, and memory problems, with many describing nearly identical symptoms including extreme temperature fluctuations, constant hand tingling, feet falling asleep while walking, and difficulty articulating words or saying the wrong ones entirely. Several members emphasized the importance of seeing a rheumatologist for further testing, including a lumbar puncture to definitively rule out MS, and trying different medications since each person responds differently. A recurring theme was the loneliness and self-doubt that comes with fibromyalgia's unpredictable symptoms, met with compassionate reassurance that the pain is real, the community understands, and practicing self-care and gentleness with oneself is essential.

A MyFibroTeam Member

Yes. Numbness in extremities...especially left arm. Shoulder girdle weakness ...carrying a purse makes my shoulder feel like i did a bog workout. Humming/vibrating sensation in hands and feet, feeling like there is a very low voltage of electricity running through me, twitching continuously in same spot for up to two weeks, head feels like a bowling ball attached mt my neck, fingers feel too uncoordinated to even text, burning tongue, tongue feels to big for my mouth making me feel like I cant speak properly, unable to articulate words properly, stuttering, tripping over words, saying the wrong words, too tired to dry hair, doors feel heavy to open (like metal doors to work office etc), bones hurt, shooting pains, burning skin, feeling like my skin is chaffed (like a rug burn), anxiety, troubel swallowing some days, my body cracks all over, shooting pain in hip, burning scalp.. just to name a few

November 3, 2018
A MyFibroTeam Member

Yes i have a lot of the same symptoms you described. I have burning sensations randomly all over my body i almost feel like it is on fire and that will be one min then ill be freezing cold the next with severe joint aching(cold makes it worse), i have tingling sensations in my hands ALL the time almost constantly and in my feet sometimes. My feet just like randomly go to sleep on me even when im up walking around and so i usually have to sit down because i cant walk on it when it goes to sleep, the speech problem YES its like my brain doesnt communicate with my mouth anymore ill know in my head what i want to say and something else that doesnt even makes sense comes out somtimes i also randomlt stutter and never had these issues it all started when i was diagnosed. I also will be holding stuff and just drop it out of nowhere its so random like my hand just gives out. So i think you are definitely experiencing fibro symptoms, and the worst of them.

November 3, 2018
A MyFibroTeam Member

Yep, sounds like it. I find new symptoms every so often. Each new one I find, I feel like a hypochondriac. I was rarely ever sick beforehand as well. It sucks. No way around it.

November 3, 2018
A MyFibroTeam Member

It walks like a duck and it quacks like a duck...If you ever find out it is something else, let me know. I am so sorry, but it sounds very similar to my symptoms. I so often wish it was not Fibro. but something that could be diag. and healed, but it isn't and it can't. That is what this site is for; to keep us from feeling like we are losing our minds (sometimes) There are so many nice people on this site; I should use them more or invite them to my pity parties. God Bless

November 3, 2018
A MyFibroTeam Member

These are Fibromyalgia symptoms there are so many symptoms that you feel like your body is out of control.

You need to see your Doctor or Rheumatologist so you can have a lumbar puncture to rule out MS.

Also the Rheumatologist can give you medication that you can trial to see if it works for you.

Not all medications work the same because we are all individuals and our metabolisms are totally different.

Hopefully you will find out for sure if you have MS not just Fibromyalgia.

πŸ’œπŸ’–πŸ’œπŸ’–πŸ’œ

November 2, 2018

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