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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is all this normal for me?

A MyFibroTeam Member asked a question 💭
Australia

Hi everyone, I have been suffering a lot lately, I have been majorly stressed and not sleeping well, also the weather has changed to super hot. After many years of suffering, I have conclude I have fibromyalgia. My latest symptoms are, aching hands and wrists, shoulders, neck, feet and ankles, my hips. My eyes are very sensitive to light and feel dry, headaches often occur. One of my worst days, The pain in my neck and back of my head was so excruciating and then I got a savage migraine. I… read more

October 28, 2018
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Answer Summary

Members warmly encouraged someone experiencing pain, fatigue, light sensitivity, and anxiety to seek a formal fibromyalgia diagnosis from a... Read more

Members warmly encouraged someone experiencing pain, fatigue, light sensitivity, and anxiety to seek a formal fibromyalgia diagnosis from a doctor rather than self-diagnosing, emphasizing the importance of medical documentation for potential disability benefits and ruling out conditions like lupus, thyroid disease, or Lyme disease through blood tests. Several members shared practical advice for the doctor visit, including bringing a trusted friend as an advocate, requesting an 18-point trigger point test, tracking symptoms in a notebook or app, and managing needle anxiety by going to a blood clinic and chewing gum during the blood draw. A recurring theme was reassurance that most of the symptoms described are typical of fibromyalgia, combined with gentle but firm encouragement to prioritize health by scheduling an appointment soon, even though the diagnostic process can take months and finding a caring doctor is essential.

A MyFibroTeam Member

Hello Christine how are you doing did you get a diagnosis from your doctor yet.

November 1, 2018
A MyFibroTeam Member

Welcome to the site. I can see what you are saying. We can answer but we shouldn’t. You should see a doc. People come down with fibro at all different ages and sometimes there is a family tendency. You don’t want to self diagnose and you do want the doc to have an open mind. Between now and the time you can see someone take tips from here about making yourself as comfortable as you can...epsom salt baths or topical or oral analgesics, heating pads, etc. Track your symptoms. A simple notebook will do but there are apps for phone and tablet too. It can be a long haul...a wait for the right doc, etc. There are good and bad books out there. @A MyFibroTeam Member suggested The Fibro Manual by Ginevra Liptan MD and I am finding that helpful but BIG...a little overwhelming. Just like fibro can be. Be as well as possible and we are here!

October 28, 2018
A MyFibroTeam Member

Hi
Good luck with getting a diagnosis from your doctor. If you have no luck then ask to see another doctor.
Definitely a good idea to take someone with you.

October 30, 2018
A MyFibroTeam Member

@A MyFibroTeam Member, it's always best to take an advocate with you in case you forget to ask a question or the Dr tries to steer you into another direction. I believe that's very important! Besides if you don't remember what the Dr told you, your advocate can help you remember it! Always try to take someone with you when you go!

October 30, 2018
A MyFibroTeam Member

Sounds like me. Ask dr for an 18 point trigger test.

October 29, 2018

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