And PS. I’ve had months where I get this almost every day. For the first time in 9 months, I’ve had about a month straight where I haven’t had them as much, knock on wood. I’m taking b12, d3, vitamin C, probiotics, glutathione, alpha lipoid acid, methylfolate and omega 3.

Try some deep breathing in a,quiet dark room.

I do! It’s really hard to describe to other people

Yep!!! I’ve been talking about this one since day 1. It was my first symptom. Some months are better than others and other months my system is overruled by these sensations. I always say it feels like my bones are humming or like someone pulled a guitar string inside of my body and it’s just vibrating. It runs down to my hands and feet . It happens super quick then it’s gone. No one, I mean, no one can tell me what it is but it sucks. It makes me want to come outside of myself. I HATE them. They are so uncomfortable.

@A MyFibroTeam Member my flare ups feel exactly like growing pains from childhood but all my bones!

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