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A MyFibroTeam Member asked a question 💭
New Jersey, NJ

I am not sure if this feeling is my partial seizures or fibro or something else.

Any input would be great! It's a feeling like my bones vibrate very odd and I have a weird feeling like something is going to happen but not in an anxious way if that makes sense. It's just an odd feeling. Happens every now and then

October 15, 2018
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Answer Summary

Members connected over the mysterious and difficult-to-describe sensation of internal buzzing or vibrating that feels like bones humming or a... Read more

Members connected over the mysterious and difficult-to-describe sensation of internal buzzing or vibrating that feels like bones humming or a guitar string vibrating inside the body, most commonly felt in the hands, feet, and long bones like the femur. Several members shared potential factors that seemed to help reduce the frequency of these sensations, including high-dose B12 and B-complex vitamins, staying well-hydrated, and addressing low potassium or sodium levels, though no one has received a definitive medical explanation for the cause. A recurring theme was the profound relief of finally finding others who understand this specific and isolating symptom, with many members describing it as similar to childhood growing pains affecting the entire body rather than the typical fibromyalgia skin-burning sensation.

A MyFibroTeam Member

And PS. I’ve had months where I get this almost every day. For the first time in 9 months, I’ve had about a month straight where I haven’t had them as much, knock on wood. I’m taking b12, d3, vitamin C, probiotics, glutathione, alpha lipoid acid, methylfolate and omega 3.

October 15, 2018
A MyFibroTeam Member

Try some deep breathing in a,quiet dark room.

October 15, 2018
A MyFibroTeam Member

I do! It’s really hard to describe to other people

October 15, 2018
A MyFibroTeam Member

Yep!!! I’ve been talking about this one since day 1. It was my first symptom. Some months are better than others and other months my system is overruled by these sensations. I always say it feels like my bones are humming or like someone pulled a guitar string inside of my body and it’s just vibrating. It runs down to my hands and feet . It happens super quick then it’s gone. No one, I mean, no one can tell me what it is but it sucks. It makes me want to come outside of myself. I HATE them. They are so uncomfortable.

October 15, 2018
A MyFibroTeam Member

@A MyFibroTeam Member my flare ups feel exactly like growing pains from childhood but all my bones!

October 29, 2018

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