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A MyFibroTeam Member asked a question 💭
Windsor, ON

I recently went to the doctors to check for PVD which is narrowing of veins or clots in legs which surprising was negative. I have adema in the lower legs, my skin feels tight, my whole legs are very painful very difficult to walk, and my steadiness is not the best. Does anyone have these symptoms? So far my doctor doesnt know what is causing it. Could it be the fibro?

August 9, 2018
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Answer Summary

Members rallied around someone experiencing unexplained leg edema, skin tightness, weakness, and pain despite a negative PVD test, with many... Read more

Members rallied around someone experiencing unexplained leg edema, skin tightness, weakness, and pain despite a negative PVD test, with many sharing that they experience similar symptoms and that diuretics (water pills) prescribed for fluid retention made a significant difference in reducing swelling and discomfort. Several members emphasized the importance of getting a heart evaluation, pursuing further testing like MRIs or blood work, and not accepting fibromyalgia as a catch-all diagnosis without ruling out other potential causes such as lesions, arthritis, or inflammation. A recurring theme was the shared frustration of chronic leg pain and swelling that makes walking difficult, coupled with strong encouragement to advocate for oneself, seek second opinions, and trust your body when something doesn't feel right.

A MyFibroTeam Member

Well, the diuretics did help the water retention. I do still have a lot of inflammation showing in my blood tests. It doesn't hurt as much though as with all the extra water.

August 9, 2018
A MyFibroTeam Member

To many doctors blame fibro and dont do more tests so you need to be vigilant about getting more tests done or a second opinion.
If your body tells ya something isnt right dont take oh it's the fibro

August 10, 2018
A MyFibroTeam Member

i have a leasion on L3 and I have same synthoms

August 10, 2018
A MyFibroTeam Member

I have many of these symptoms, but I don't know if my skin is tight or if I'm stiff. I was seen in ER about 6 weeks ago and had ultrasound and x-ray. Negative results. I have low blood pressure. And had an MRI about 1 1/2 weeks ago was "fine". I haven't been using my legs so they have gotten weak, and the arthritis in my knees hurts worse from a 4 lb weight gain. I will be starting PT next week. I sure hope to have this back under control. Summer is a stinky time for leg problems, but really any season is. God bless you.

August 9, 2018
A MyFibroTeam Member

Yes i do i had the PVD also and it was negative in my case as well. I also have slight high blood pressure and my dr put me on hydochlorothiazide which is a bp med but also a dieretic (hope i spelt that right) after a couple of weeks the swelling went down and some of the tightness went away. My legs are my worst part they hurt constantly and are always so weak feeling and tired. Hope this helps you some.

August 9, 2018

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