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im in pain constantly,never any let up at all. was wondering if any1 goes any length of time without pain and if u do,do u know how?
also are there any mobility aids that might make life a little more livable?
any tips on sleeping would be great xx
Answer Summary
Members openly discussed the reality of living with constant fibromyalgia pain, with most sharing that complete relief is rare but pain can... Read more
Okay, I always say what works for one may not work for another but here is what gives me some relief! For pain, oxycodone is the only thing that helps!! I know I know, it’s an opiate but frankly if it takes my pain from a nine to a four every day, I’m taking it!!! For sleep, amitriptylene has been a life saver!!!! I was like everyone else and barely got any sleep at night for 10-12 years! Then I was told to mention amitriptylene to my doctor and I am forever thankful!! I usually fall asleep within an hour of taking it and sleep for at least six but more like eight hours EVERY night!! It’s worth a shot! Now I also believe, just my opinion, that we should all be on an anti-depressant cause let’s face it, this illness is brutal and only gets worse as time goes on! And let’s not forget the never ending list of symptoms that come along with this disease! Ugh!! Good luck everyone!!
Agree! Endep has been my sleep life saver. I also find that herbal sleeping tabs also work for me. I take 'Natures Own Complete Sleep Advanced'
@A MyFibroTeam Member denial is a totally normal reaction too this disease! It took me a good 2 and a half years of been almost house bound before I accepted that I had fibromyalgia. And that this ment somtimes I will not be able too do the things I used too. But I think the key is accepting that and not being so hard on your self xx
Getting the constant pain under control can be very difficult ! Too be honest I personally always have pain you just get better at managing it your self x you should try some complementary therapies like an aromatherapy massage really helps you get a good nights sleep. But then again it’s just finding what works for you personally x I still struggle a lot with sleep also, some nights I can get over with no problem then other nights I see every hour on the clock. It can get you down quite a bit but just make sure you are talkingtoo people about how you are feeling x
Try a hot bath with lavander before bed ensure your room is dark. Even try listening too som relaxing meditation music. Any thing is worth a try xx
Really hope you manage too get some good sleep x and some pain relief xx
I only do gentle stretching because if I do them to hard I can't move the next day x 💜
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