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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Seattle, WA

Hey guys! Sorry I’ve been away for a while
So I went to my neurologist yesterday because my issues with memory and forgetfulness have gotten worse. I’ve also started slurring my words every now and then, I’ve lost my balance and I’ve gotten very clumsy lately, I’ve also noticed that my skin feels very tingly like I’m itchy all day long ESPECIALLY at night. He tells me “sounds like you’ve got ADD because you have a hard time focusing and you’re forgetting things” :/ I’m sorry but is it just me… read more

May 10, 2018
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Answer Summary

Members strongly validated someone's frustration after their neurologist dismissed worsening memory loss, word-finding difficulty, balance... Read more

Members strongly validated someone's frustration after their neurologist dismissed worsening memory loss, word-finding difficulty, balance issues, and tingling as possible ADD rather than exploring fibromyalgia-related cognitive dysfunction. Several members shared that cognitive symptoms like brain fog, word retrieval struggles, and memory problems are real manifestations of fibromyalgia, with one member describing a thorough three-hour neuropsychological test that documented major cognitive impairments and helped prove their condition was legitimate. A recurring theme was the importance of finding a doctor who listens and takes symptoms seriously, getting proper testing to rule out other conditions, prioritizing rest, and remembering that these changes are not imagined but part of a complex illness many physicians still don't fully understand.

A MyFibroTeam Member

There is a test you can take by a Psychologist..that is well worth taking..its very thorough ,it is a Cognitive test..it shows your memory,dysfunction ,also focus problems ,.fibro fog is real,.It was a 3 hour test..my brain was fried by the time I was done. The test, states ",major impairments" in every category ,Fibromyalgia makes this happen, and it can be proved...so good luck to you..I do know how frustrating it is,,when no-one believes you..my heart goes out to you.Many doctors..have not done any research about Fibromyalgia.in the Cognitive area...most GP's are only concerned about giving you medications for our symptoms, .and ignore the cognitive problems, ..because medications for symptoms is where they make their money.But the lucky thing is, we can now prove Fibromyalgia is real.. in the Cognitive Dysunctions, and all 200 symptoms..gentle hugs your way.

May 10, 2018 (edited)
A MyFibroTeam Member

Yes ive gotten dianosed with other conditions that so many push off as just fibro related but thabks to testing proved otherwise.

May 10, 2018
A MyFibroTeam Member

My advice would be to look for another doctor. I experience forgetfulness, memory loss, and sometimes have to search for my words. That's part of fibromyalgia and not necessarily ADD.

May 15, 2018
A MyFibroTeam Member

I used to be so smart and quick with answers to a simple question and conversations. Now there are times I am stumbling over my words. I have to stop and think about what I want to say before saying anything. It has to be the most upsetting thing out of all of my symptoms. It feels like my mind and body have been taken over by aliens. I miss the me I used to be.

May 15, 2018
A MyFibroTeam Member

Best watch a doco called 'take your pills". Adderall is very closely related to meth and can cause long term serious issues and addiction.

May 12, 2018

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