For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
I'm sorry that you are at this point in this illness. What jumped out at me is the sleep piece.
I have had fibro 30+ yrs. Found it is key to find a med for sleep.
I tried many, as you may have too. Sleep definitely affects pain the next day.
I hope you can look at that further.
Really relate to the pitfalls of going out,holidays etc
It's a tough illness for sure.
Sending you hugs. Nancy
The fatigue is the worse symptom of FM. Even thinking is exhausting. A shower and shampoo is an activity that I need 3 hour nap to recoup from.
@A MyFibroTeam Member, I don't think it will be this way the rest of your life, just if you are getting pushed into things you don't feel like doing. Having acceptance from others makes it much easier on your health. Going out for 1 hour, baby steps, will make you feel like you accomplished something, not an All or Nothing mentality. Don't beat yourself up for not being able to get out for a whole day! Even 1/2 hour maybe enough once a week or every couple of weeks! Do only what you can! Tell others to get off your back! Hugs and love to you!
I’m so glad I’ve read this thread! No one understands how exhausted I get from simply getting ready, and doing the simplest tasks. I know if I go out for the day, (I usually restrict it to one day a week) the rest of the evening I won’t be able to cook or clean that day. My family (husband) doesn’t get it, he knows I’m active by nature and this exhaustion kills me because of how restrictive it is but still speaks to me like I’m lazy as if I chose this! I have ocd so letting go of these tasks because I’m simply unable to do them really does get me down, but what choice do we have. I have also tried lots of different anti depressants with little to no success and often get a lot of side effects so at the moment I don’t take any and mentally fight with myself everyday about what I can do to improve my life as currently I feel like it’s just an exsistance to get by because im certainly not living at all ;(
I think the fatigue and the depression are two different things, and they do connect.
I don't go out much but when I do, I factor in the rest time, sitting in my car before I start to drive following an appointment or store trip, and again when I get home. I never try to drive until I sit long enough to feel ready - I've even pulled over if I start getting stressed with traffic or I'm tired. I used to love driving so much!
Now like Lizzy I only carry in what has to be refrigerated, I'll get the rest later or even the next day. And I always get food from a drive-through before going home, no way will I be up to preparing a meal.
As for the depression, just yes. It's not easy to think of all I used to do and loved to do, and now a simple doctor's appointment or trip to the grocery is so exhausting I can't even walk to the mailbox afterward on those days.
I personally choose not to take medication for depression - in fact everything I've ever tried makes me more depressed - but it does seem to make a difference for many people.