Am I the only one who doesn’t realize they are extra miserable until you’re already up for the day and at work? I assume its because us fibro warriors never know what its like to wake up feeling good and pain free. So on a day I’m in a huge flare and super fatigued and supposed to work, I dont realize how bad I am until I actually have to start doing work and its too late to call in sick. I have always had the “suck it up and power through” mentality but mind over matter doesnt stop fibro. I try… read more
I know exactly what you are saying. That has happened to me many times. I figured out that as long as I was moving and occupying my mind with something the pain wasn’t as bad. So showering, washing and drying my hair, putting on my make up, and dressing kept me occupied enough that I didn’t realize how bad I felt until I stopped moving.
I realized for me that movement and distraction equaled less pain. But the moment I stopped, the pain came on like a dark cloud.
I use to drive my husband crazy because I would keep myself so busy in the house running back and forth just trying to find something to do. He would say “why don’t you just sit down and relax”? I would reply to him that I couldn’t because once I did I wouldn’t be able to get back up!
Always find it difficult to get up and get to work. Feels so overwhelming doesn't it. Always feel improved once at work but such effort involved.
The answer to this is to have a person to take my place at work when I am sick.
The person who is supposed to do that always has a pat answer why they can not work.
In short, I get no relief. I have to work.
I make mistakes. Now I'm fired.
You know what I wish? I wish I was a powerful witch. I would cast a spell on the people who matter. The spell? That they would feel for one day how I feel everyday.
How cruel is that?
I am very stubborn! It is not very good. I would rather do things on my own rather than have to ask for help. I always seem to over do it. I pay for it at the end of the day. I wish it did not have to be like this!😥
Sometimes I know it’s bad when I wake up because I have a hard time even getting out of bed. There have been times it doesn’t seem too bad and then it hits me once I get to work like it did today. Right now I do have an understanding boss and the ability to work from home on my bad days (but that depends if the network is working and Internet isn’t having any issues). Even on days I make it through work I’m wiped out by time I get home. My husband is pretty understanding but has medical issues too so we’re quite the pair. Sometimes he’s just like you don’t need to do anything, just stay on the kids to make sure they are getting things done. He’s like you can tell them what to do or text them. Yeah it sounds simple when you say it, but when you feel that bad, even doing that...using the brain power to focus on what they are supposed to be doing, energy to tell them, it can be so overwhelming. I HATE what I’ve become and I HATE that my family has to suffer from it too!! My husband is great about giving massages to help with my pain if he’s not having a bad day which is awesome!
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