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Not taking any antidepressants or hormones, tests came back normal on everything- thyroid, iron, b12, c reactive protein, etc

February 9, 2018
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Answer Summary

Members rallied around someone experiencing unexplained night sweats and weight loss, urging them to request a complete thyroid panel since... Read more

Members rallied around someone experiencing unexplained night sweats and weight loss, urging them to request a complete thyroid panel since standard tests often miss issues that endocrinologists would catch using narrower normal ranges, and several shared that their own thyroid problems were only discovered after insisting on full testing. Many community members offered alternative possibilities to explore, including unrecognized depression (which can be hereditary and cause unexpected weight loss), diabetes screening, and conditions like CIPD that present with similar symptoms, while one member found relief from night sweats using clonidine when hormones weren't an option. A recurring theme was the importance of self-advocacy with doctors, trusting your body's signals even when initial tests come back normal, and giving yourself permission to take breaks from the exhausting cycle of medical appointments when needed.

A MyFibroTeam Member

Did you have complete thyroid testing done? And just a thought, any diabetes in your family?
I take clonidine for night sweats. I can’t take hormones because my younger sister died of breast cancer. Clonidine is a blood pressure medication. I do not have high blood pressure but the drug makes it impossible to get the sweats.
I hope you find nd an answer soon.
xxxx

February 9, 2018
A MyFibroTeam Member

I was going to say to make sure it was a complete thyroid test because they usually only do a check on I'm not exactly sure what but not everything. So the initial test can say normal and there be something off with the other part they didn't test. It's happened to me many times over the years. I have hypothyroidism so I know it's changed when I get these systems; more hair than normal is falling out, more facial hair is growing, hot flashes, and night sweats. This is just from my experience. I usually go into the doctor and tell them my thyroid levels are off, they'll do the regular blood panel which doesn't include a complete thyroid panel and then they will tell me my level are fine and I will tell them my symptoms and to please do the full panel and low and behold my level is low!! Talking about it mine actually might be low now. I have been waking up sweaty. Thanks for your question! I hope you get your issue resolved.

February 10, 2018
A MyFibroTeam Member

I get sweats at any time out of no where. Please see a dr abt weight loss. Drs arent gods but they can run blood tests to get a clearer picture of your overall health. I have a hemotologist on my team of physicians. Just to check different blood levels of different things. I am suppose to go every 3 months but i get soo burned out on drs that i just took a long "mental health" break from physicians. I try to be informed about symptoms before appts. I do alot of research at times. Then i need a break from that at times. Lol

February 9, 2018
A MyFibroTeam Member

Some internists think the thyroid levels look fine but an endocrinologist will use a more narrow range for normal compared to the lab or your internist. The endocrinologist will make a diagnosis of a thyroid disorder when an internist will think your numbers are "within the normal range."
For example and these are just for illustration and are not thyroid numbers. If the normal range on labwork says 1 to 100. An endocrinologist may treat anything under 30 for low thyroid and anything over 70 for high thyroid, but a regular internist will say you're fine and you don't need med cuz you are between 1 to 100.

February 10, 2018
A MyFibroTeam Member

I have had severe childhood asthma which I have outgrown and my grandmother has lung cancer at the moment. When I was born my lungs were so crappy the doctors initially thought I had cystic fibrosis.

My aunt had severe clinical depression and comitted suicide.

February 9, 2018

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