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Doctor Don' T Understand And I'm Frustrated
A MyFibroTeam Member asked a question 💭

Hello everybody, I went today to a chronic pain clinic. An Internalist saw me and after along talk, she told me that the fibromyalgia was caused by my traumas and also because my central system is very sensitive (which I agreed) so the message system in my body is not efficient. And that's ok I got that!!! But she sent me home with no solution telling me that with psychotherapy and CBT my pain will be much better. My question to her was "I don't understand, so there is nothing that can be done?"… read more

posted January 31, 2018 (edited)
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A MyFibroTeam Member

I can't believe doctors are still saying that fibro is not a diagnosis. I am sorry that you had to listen to a ignorant doctor. As for trauma causing fibro, I believe that is what makes fibro show up. I have read that they believe fibro is caused from the epstein barr virus which causes mono. Fibro is a phase of epstein barr. Look up medical medium on fb. He is a doctor that has been researching fibro for years. It is very interesting info. I hope you read his info so you will understand fibro better. As for nothing to help fibro, pain meds and muscle relaxers along with vitamins and supplements can help with fibro symptoms. Alot of people also say that massage and acupuncture are also helpful. Don't give up hope, there are things to help you, it just takes time and the right doctor to help figure out what will work for you. Good luck. Hugs

posted January 31, 2018
A MyFibroTeam Member

I definitely think fibro is caused by a physical or emotional trauma and reading many members on here stories,most have had one or the other! That’s also brutal that she told you fibro is just a general cover up for unexplained pain and other effects! This doctor or whatever she is, needs to spend a day in our shoes! She sounds like a real winner to me! Why are people in these positions working in a pain clinic when they haven’t got a clue what they are talking about?? This makes me so angry and I feel so bad for you! Hang in there and come on here as much as you can when down and out or have a question cause we know more than a lot of doctors out there!!

posted February 1, 2018
A MyFibroTeam Member

Oh I get so angry when I hear stories like this. You would think doctors in this day and age would not be so dismissive about our complaints. Because they are real! And if they do not believe that fibromyalgia is a real diagnosis by now then they need to go back to school. There is no excuse for their ignorance with this condition.
And to answer your question about trauma, yes fibromyalgia is triggered by a trauma. I will agree with what Lisa said above that the Epstein’s virus has a lot to do with this. Like any herpes virus, trauma, stress, fatigue, infection and other triggers can trigger the herpes virus inside of us. And I think this is a super bug connected to Epstein‘s bar which is the herpes virus.
I was talking to my doctors and they are coming around with this thought also. I think it’s going to be a long haul before everyone gets on board but I think someday there will be an answer.
As for psychotherapy, there is proof that some people with chronic pain can benefit from therapy. Talking out traumas in hardships of ones life can allow you to release burdens you’ve been caring around for years. And then sometimes you can release some of the pain that is caused from that. I personally don’t think I would be a candidate for that only because I’m the type of person that does not carry around issues from the past. But there are many people that need help to deal with and or release bad things in their life. So if you feel you are a candidate to benefit from that I would definitely go. But as for your doctor I would find another one. When you go to a pain management doctor you expect them to help you with your pain. Not just your psychological pain but your physical pain. That’s their job.
I hope you can find a good doctor and you have better days to come. Don’t lose hope. There are some great healthcare workers out there that will help you. ❤️❤️❤️

posted January 31, 2018
A MyFibroTeam Member

I carnt believe who you seen in the pain clinic that they did not fully explain the condition!!!!
When I was first diagnosed I seen my GP who on a number of occasions I had seen.

And explained to her that I had fybromayalga!!! Especially with my daughter having been diagnosed well before me.
And me showing the same symptoms.

Eventually she referred me to see a specialist
who dynnosed Me.
she was very supportive gave me leaflets, spoke about medication I should be prescribed to take for the condition.
she also referred me to the pain management..
Which I attended the pain management course for 16 weeks.
The course involves how to live with your condition. Learn you the skill and techniques how to manage your pain.
if you are not happy see if you can talk to another GP and explain you need the support to help you live manage your condition.
even if you mention the support I have mentioned above.
Good luck and don't give up ")

posted January 31, 2018
A MyFibroTeam Member

Oh wow!!!! That is terrible!!! I've been through a pain clinic and they got me into physiotherapy, seeing an occupational therapist and a pain dr!!!! It was/is a team effort!!! I have years
of seeing counsellers, phsycotherapist and psychiatrists and despite working through some trauma from my past it has had no effect on my pain levels!!! I cant believe drs are still saying fibro is not a diagnosis! I would try and get a second opinion. I went through about 6 doctors before i got a good Dr. I would have thought going through a pain clinic they would understand Fibro. Sorry you have had such a bad experience!

posted January 31, 2018

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