Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Or help u get out of the house?

January 25, 2018
 · 
Reactions

Answer Summary

Members shared their varied experiences navigating disability benefits across the US and Canada, with many describing the frustration of... Read more

Members shared their varied experiences navigating disability benefits across the US and Canada, with many describing the frustration of initial denials, the critical importance of having a doctor willing to document total disability, and the challenge of proving invisible conditions like fibromyalgia without concrete test results. Several members explained that while disability programs exist in both countries, the availability of in-home assistance for chores and cleaning varies widely by location and program, with some states offering services through Medicaid while others require paying out of pocket. A recurring theme was the exhausting process of advocating for oneself through a complex system, leaning on faith and persistence, and holding onto hope for better treatments while managing the financial and emotional toll of chronic illness.

A MyFibroTeam Member

I am still able to work; therefore, I do not need disability yet. I have been able to start getting my Canada Pension started. For those who are not Canadians, we who work pay into a pension fund that we can start withdrawing when we are 60, or we can wait until we are 65 and start withdrawing. In order to start disability, I would have to have a doctor sign a paper to say that I am totally disabled. I would not be able to train or perform any other tasks. I know that my dad was denied a number of times because his doctor was not willing to sign the paper. My mom had to demand the doctor sign that my dad was totally disabled before my dad got any pension from the government. He had a hard time to get the pension even though there was no work that he could do. Sometimes and for some people it is difficult to get disability. Some people know how to work the system though and have no problem getting disability. They are the ones who ruin it for those who really need the pension.

January 26, 2018
A MyFibroTeam Member

Fibromyalgia is a disease and is a disability. Therefore everyone is denied the first time so you have to go in front of a couple people to prove your disability and why you cannot work full time. I heard when you turn 65 no more disability you get old age pension instead.

January 27, 2018
A MyFibroTeam Member

I probably could get social assistance here in Nova Scotia because I have heard that fibro is a recognized condition here. This is just what I have heard. I don't know for sure. I hope that I don't have to go on social assistance because it is not much money a month. It would be very hard to live and afford healthy food. I would be screwed big time.

January 27, 2018
A MyFibroTeam Member

Thx for that info. I guess we are challenged with these issues no matter where u live.

January 26, 2018
A MyFibroTeam Member

Yes, Jagdish, you need to pray for God to make a way and not to trust in man or government.

January 29, 2018

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Clydebank, UK