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Having pain behind ear and feels like the ear canal is itchy, or like a fluttering inside ear almost like a bug inside ear. I feel like sticking something in there and scratching. Sometimes my entire outer ear feels hot to touch and is very red. It feels like it is burning. This comes and goes. I also feel like my tongue is itchy at times and feel tingling in part of my lip or tongue. Is this fm as I have been newly diagnosed...

November 13, 2017
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Answer Summary

Members responded to a question about troublesome ear and tongue symptoms by sharing their own similar experiences with pain behind the ears,... Read more

Members responded to a question about troublesome ear and tongue symptoms by sharing their own similar experiences with pain behind the ears, intense itching inside the ear canal, hot red outer ears, and tingling in the tongue or lips, with several attributing these to fibromyalgia, Sjögren's syndrome, or TMJ. Several members offered practical advice, including seeing an ENT specialist, ruling out medication interactions or allergic reactions (which can escalate dangerously), using steroid creams mixed with lubricant for itchy skin, taking antihistamines like Singulair or Xyzal, and switching to fragrance-free and dye-free personal care products to reduce hypersensitivity. A recurring theme was the complex overlap of conditions like fibromyalgia, premenopause, autoimmune issues, and allergies, with members emphasizing the importance of checking medication side effects with a doctor or pharmacist and offering warm solidarity for the frustrating trial-and-error process of finding relief.

A MyFibroTeam Member

I get pain behind my ears and itching inside on occasion. The symptoms you are having, the tingling, the redness and heat sound like an allergic reaction, maybe to a medicine you are taking. You can have an allergic reaction even if you have taken meds for a while. You should ask your doctor or phamacist about it. I had these symptoms years ago from iodine(seafood). I went to the er twice in one week for it. The first time i had hives all over. Then 3 days later i ate tuna fish and my lips and ears got red and swollen and itched bad. Please check into this because allergic reactions can get worse and become dangerous. Keep us informed. Hugs.

November 14, 2017
A MyFibroTeam Member

See an ENT

November 20, 2017
A MyFibroTeam Member

Hi Joy
That sounds awful. I don't have hives but definitely sensitive to smells and also certain fibers like wool and polyester. It makes my skin itch.

November 15, 2017
A MyFibroTeam Member

My ears itch often now. I get severe hives and allergic reactions to lots of things but my itchy ears don't seem to be tied to my hives. I have TMJ and doc said it can cause tingling, pain. My Dad had itchy ears all of his life! He was forever fussing about them.

I am on Singulair at night and Xyzal twice a day for my allergies and I also have a rescue inhaler for my asthma. I have an Epi-pen now after having a severe reaction to a wasp sting.

Sometimes I even have to take Benadryl on top of that for an immediate allergic response to something.

Currently I have to use Free & Clear soap and Shampoo/Conditioner products that Walgreen's carries because my whole body is hypersensitive to fragrances, dyes, preservatives, etc.

November 15, 2017
A MyFibroTeam Member

@A MyFibroTeam Member. It is a trial and error thing trying to find the right meds to help us. I hope the new combo helps you without wanting to eat everything sweet in sight. Been there done that. I wish they would have a med that would make us lose weight. Wouldn't that be nice. Good luck and have a great day.

November 15, 2017

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New York, NY