Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Laredo, TX

Does anybody experience that your body temperature drops instead of going up?
Or it is just me?

October 30, 2017
 · 
Reactions

Answer Summary

Members connected deeply over the frustrating experience of body temperature dysregulation in fibromyalgia, with many describing extreme... Read more

Members connected deeply over the frustrating experience of body temperature dysregulation in fibromyalgia, with many describing extreme swings between burning hot sweats and bone-chilling cold, often within minutes and without warning. Several members shared practical coping strategies including wearing layers that can be easily added or removed, keeping inexpensive knit gloves on hand for cold extremes, tracking personal baseline temperatures to communicate with doctors (many noted their normal runs around 97 degrees), and considering thyroid testing or vitamin B6 and B12 supplements. A recurring theme was the emotional toll of these symptoms, from the embarrassment of excessive sweating in social situations to the isolation of feeling misunderstood by medical providers and loved ones, met with fierce solidarity and reminders that this community truly understands.

A MyFibroTeam Member

Thank you for sharing this information. It does make me feel better. It is not in my head it is not an excuse to stay home in bed. My wife didn’t understand God bless her soul

October 30, 2017
A MyFibroTeam Member

@A MyFibroTeam Member my hair does the same to
When I’m hot I feel like I’m burning from the inside out
When I’m cold I feel frozen to the bone
I can have the heater on in one room because I’m so cold and then a minute later need the fan on in the bedroom because I’m so hot
There is no in between it’s either I feel like I have a raging fever or I feel like I have hypothermia
And sweating it’s disgusting and embarrassing I don’t know how many times a day I need to change clothes

I felt so embarrassed a couple of weeks ago as I live in a caravan park every Friday night we all get together in the activities room for a laugh a chat or to play pool just a wind down from the week to relax with each other
I was sitting next to a lady and she turned around and said to me are you sweating which I didn’t even realise at the time I was as there were 3 of us squished in a 2 seater couch when I discovered i was in fact swearing I apologised to her and said it was a symptom of fibromyalgia and she said to me I’ll remember never to sit next to you again and looked at me like I was contagious :(

I felt so embarrassed and ashamed and it was said in front of a few others

November 1, 2017 (edited)
A MyFibroTeam Member

My normal temp is 97.3. I also remind my Dr..if my temp is 99 that is a fever for me!!
I'm either freezing or WAY 2 hot...no happy medium and I can switch between the 2 at a drop of the hat! 💜

October 30, 2017
A MyFibroTeam Member

Yes! I'm either hot or freezing! I can't seem to regulate my body temperature at all most of the time.

December 4, 2017
A MyFibroTeam Member

I live in Scotland so it's a bit difficult to figure out if it's me or the weather. An old saying/joke here in Scotland is "I enjoyed Summer in Scotland this year! It was a Tuesday"...lol
Joking aside my body temp can go hot and cold, regardless of the weather of if we have the heating on around the house. Cold and hot spells come and go. I just manage my problems as they come at me. Self diagnosing online can lead to words that make us worse. I found drinking cold water be me hot or cold helps.
Another wee hint is I drink tons of vitimin C Orange juice. Might be a placebo, but it kinda helps my immune system...Hardly ill I am, always in utter agony and confussion tho.

Hope this helped...
Cheers..

October 30, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Richmond, VA

A MyFibroTeam Member asked a question 💭
Seattle, WA

A MyFibroTeam Member asked a question 💭
Boston, MA