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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Seattle, WA

I'm noticing I'm having a hard time regulating my body temperature.. most of the time I'm cold. At home if I have the windows open, the slightest breeze will give me goosebumps. I then close the windows. A while later I'm hot, so I open the windows again. It's a back and forth thing. I also have a hard time getting my body temperature up. If I'm cold, it takes forever for me to warm up. Does anyone else have this issue?

May 10, 2017
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Answer Summary

Many community members recognized the struggle with regulating body temperature as a common part of fibromyalgia, with most saying they are... Read more

Many community members recognized the struggle with regulating body temperature as a common part of fibromyalgia, with most saying they are usually cold but also experience sudden waves of heat throughout the day. Several members shared practical strategies for managing the back-and-forth, including dressing in layers, using space heaters, heating pads, heated blankets, and sucking on ice when overheating. A recurring theme was relief at knowing they were not alone in this experience, with many expressing that the validation from others helped them feel less confused and less isolated.

A MyFibroTeam Member

Unfortunately we have problems regulating body temperature. It sucks and it's definitely part of fibro. I got a heated blanket to use and help me warm up. Being in the heat is just as bad as cold for me. My boyfriend is getting me an umbrella holder so when I'm outside im not in the sun

May 11, 2017
A MyFibroTeam Member

Yes! Yes! Yes! Yes! I am so glad you posted this. I thought I was going crazy!!! I get chills and goosebumps and get bundled up in sweatershirts and blankets and next I'm sweating.

May 10, 2017
A MyFibroTeam Member

Yes I call it the hot colds, I thought I was the only one who had this weird thing going on.

May 10, 2017
A MyFibroTeam Member

Same here--I dress in layers so I can take off and put on them as I need to.

May 14, 2017
A MyFibroTeam Member

I have the same problem. I can't tolerate cold or heat. Cold when the a/c is on, hot when it's off.......since we don't have much cold here, it's the heat that bothers me most.

May 12, 2017

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