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Because of the mask perfected, worn daily it's become a second skin. Do you still feel the need to hide, to not share how you really feel. Because even though we all understand, we all have been there, but we've been so conditioned in our fears and well validated as we've lost so much that even here you still have the same insecurities.
Answer Summary
Members connected deeply over the question of whether they still hide their pain even in a supportive community, with responses ranging from... Read more
And yet we get thru every one don't we.
WE ARE STRONG, AWESOME PEOPLE!!
And even moreso on our worst days.
When anyone complains about me giving out or being flat in bed for days, weeks, I think, you have no idea just how strong I have to be to do this. Like I just lay here. right.
So they can say what they want, I know the truth.
I'M FIBRO STRONG💪
To all my family , why should we have to put on a mask and pretend we are fine ! Because we are not fine we are hurting with real pain ! i am not putting on another mask for anyone take me as i am or leave me alone ! for i am a good kind ,loving person caring and giving , so i expect that if you really care about me then except me for me ! i mean people get colds and oh my goodness they cant take it, oh ya let them try having what we have and see if there cold compares to are pain ! love peace and GODS MERCY ON US ALL ! love your sister michele
@A MyFibroTeam Member i would like to thank you ,oh so very much for your PRAYERS & BLESSINGS YOU HAVE PRAYED UPON ME ! this is what i don't get you know 99% of us on here have never meet , but we LOVE .PRAY Wish them a pain free day , give them comfort help them out allow them to get things out of there mind ! But are loved ones can not seem to find it in there hearts, mind , and soul ! to be able to do that for the ones they love ! like the shooting in LAS VAGUS ,there was no race , beliefs , not anything it was just people helping people ! what a shame that it could be that way every day ! could you just imagine if it was that way every day ! what a wonderful world it would be ! But one day it will be that way but better oh a million times better ! so i do keep my eyes on the sparrow and my ears waiting for the trumpet to blow and then to be called home to be with the LORD ! But again i really Thank you ! As i have also asked the LORD to be with you and comfort you my sister ,and for oh so many pain free days may he put upon Your life ! and for every ones life ! So i send my love blessings and prayers be upon you ! sorry if you can not read this but i am trying not to fall asleep ! always your sister threw GOD ! always michele
@A MyFibroTeam Member. Hello there fellow Nana. I dont really have hypersensitivity with skin, a friend of mine does. I have light sensitivity tbough. This lovely affliction that we all share definitely has every possible symptom of every illness discovered. I really am blown away that fybromyalgia has been able to acquire stock in every symptom. Scary, the continuous adding on of symptoms, treatment and medicine. Hmm im worried that was this a masterpiece from Bernie Madoff, possible ponzi scheme. Lol. Just having a laugh. I mean the theories of miracle cures are endless, im awaiting for extraterrestrial intelligence theories to join the team.
Hang in there
person I know was going on how they'd NEVER talk down to ANYONE and I ducked down as quick as I could and yelled... WATCH OUT FOR PINOCCHIO NOSE!!!
no one this rock is perfect, even we fibros. today I made a neg remark and I got after myself for talking neg just because I was around a neg person.
it is contagious.
so I walked away from the person about 5 yards to breathe better thoughts, and tried to keep aware of what was about to be said by me.
at one point after the person did more neg talk, I said out loud to myself, I'm going to walk away before I say what I shouldn't.
and I did.
it wasn't my intent for the person to hear but they did.
but the neg talk stopped, so it helped us both.
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