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A MyFibroTeam Member asked a question 💭
San Jose, CA

Has anyone here been successful in getting SSDI with Fibro or with multiple diagnoses ? I go before a judge soon and just wondered of others outcomes.

Thanks, Darla

July 11, 2017
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Answer Summary

Members shared their experiences navigating the SSDI application process with fibromyalgia and multiple diagnoses, with the overwhelming... Read more

Members shared their experiences navigating the SSDI application process with fibromyalgia and multiple diagnoses, with the overwhelming consensus being that approval often takes multiple attempts (typically two to three denials) and can stretch over years, making persistence essential. Several members offered practical advice, including working with a disability lawyer who knows the system, documenting every single symptom and limitation no matter how small (like difficulty mixing brownies or lifting trash bags), and being thorough when explaining what you cannot do during hearings. A recurring theme was the frustrating but common experience of initial denial followed by eventual approval, often after appearing before a judge, with members encouraging each other to stay hopeful and not give up despite the exhausting process.

A MyFibroTeam Member

@Darlea tell every symptom, what you cannot do and things you need help doing. Every little thing like cant mix brownies or lift trash bags. That helped me!

July 13, 2017
A MyFibroTeam Member

I filed back when I was 56 or 57 and was turned down. On the form, they say you can appeal, which I did. Next step I had to wait for a court date. Then I got a letter saying I was approved. I have heard from several people that they turn every one down the first time. So don't get discouraged.
Good Luck to you.

July 12, 2017
A MyFibroTeam Member

I was able to get SSDI for the symptoms it was causing.

July 12, 2017
A MyFibroTeam Member

I didn't get my SSDI until after I was diagnosed and had surgery for my scoliosis. I had tried years earlier and did not get it

July 11, 2017
A MyFibroTeam Member

I know people who have been given disability status through the court, but it is a process!
1) Get yourself a good disabilities lawyer. He will know what to do and what to say. It will save you lots of frustration!
2) It is almost standard that you will be turned down the first time
3) It will take you two to three tries before you get SSDI status.

July 11, 2017

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