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Why Do My Lymph Nodes Swell When I Flare Up
A MyFibroTeam Member asked a question 💭

Every time I have a flareup my left lymph node under my neck swells...is fibro autoimmune related?

posted July 9, 2017
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A MyFibroTeam Member

Yes, it's an autoimmune disease. Even though they call it a 'syndrome' because they don't know enough about yet to call it a disease. That's what I've read.
I thought I posted already but maybe I didn't hit answer?!?! I know the answer to this just couldn't put it into words haha fibro fog?! So I copied and pasted from a website (maybe because I named the website my post was removed)

they're often a symptom of a chronically active immune system—your body is increasing its number of white blood cells to fight off the bug, so the area gets puffed up with them.

However, especially in FMS, they may also be a consequence of what some researchers describe as thick or sluggish bodily fluids.

Lymph is a fluid that contains white blood cells and moves through your body's lymphatic system. In FMS, the lymph that would normally pass through easily seems to get backed up. We have lymph nodes throughout the body, in these locations:

under the jaw & chin
in the groin
in the armpits
down both sides of the neck
on either side of the spine on the back of the neck
on either side of the thyroid gland in the front of the neck
behind the ears
on the back of the head
If you have swelling or pressure in the center of your neck, it could be a problem with your thyroid gland. Be sure to have your doctor check that out right away.

Swollen lymph nodes don't require any treatment just because they're swollen. However, if they're painful, you have several options for easing the pain:

heat and/or ice, possibly alternating (Try different combinations to see what helps most.)
@Ibuprofen, other NSAIDs or other pain medications.
manual lymph drainage (a type of massage) if it appears to be stagnant lymph.
If you suspect you have pain in one or more lymph node, keep track of how you're feeling. Have you been sick recently or exposed to someone who was sick? Are you more tired than usual? Note any upswing or other change in symptoms and talk to your doctor about it.

If you opt to treat painful nodes with manual lymph drainage, be aware that it's a form of deep-tissue massage and the massage therapist will likely use a lot of pressure. That's not something all of us with these conditions can handle.

Clear communication about your pain levels and about the after-effects of manual lymph drainage are essential for successful treatment that doesn't exacerbate your other symptoms. Make sure you're going to a therapist who understands the unique features of these illnesses.

posted July 9, 2017 (edited)
A MyFibroTeam Member

Fibromyalgia IS an autoimmune disease.

posted July 9, 2017
A MyFibroTeam Member

Oh yeah, dump that Dr. ASAP! A lot of doctors will work with you on a cash-only basis if you only don't have insurance and they will work out a discount so you should definitely ask if you don't already beforehand about that alternative. And yes you're right it has almost the exact same symptoms as Lyme disease luckily I went to the Mayo Clinic here in Florida and Jacksonville Florida they have one and they did a test for Lyme disease and luckily it was negative so hopefully whoever does your blood work next will do that test and make sure that it is not Lyme disease or lupus it's also very similar to lupus.

posted September 2, 2017
A MyFibroTeam Member

ahh yes, thank you! very helpful. makes alot of sense. its hard because i feel like this "syndrome" is a sign of lyme disease which is labeled as an autoimmune . havent been able to get more tests done because i dont have insurance right now and the last doc wasnt very passionate about what she was doing and wanted to get me in and out my A&A tests came back postive once and negative after. so she just labelled me fibro with depression and tried to hustle me some pain med and muscle relaxers.

posted July 10, 2017 (edited)

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