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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Aledo, IL

My spouse is wonderful, but how do you get them to understand that you are no longer going to be the person you where before fibromyalgia?

May 31, 2017
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Answer Summary

Members shared heartfelt strategies for helping spouses understand life with fibromyalgia, with the most consistent advice being to... Read more

Members shared heartfelt strategies for helping spouses understand life with fibromyalgia, with the most consistent advice being to communicate in small, digestible pieces rather than long explanations, ask for help more frequently while explaining why it's needed, and provide educational materials about chronic illness to reinforce that this is a lifelong adjustment. Several members described the emotional toll of invisible pain and the frustration of partners who struggle to grasp the depth of daily suffering, with some noting that it often takes a crisis or taking over caregiving responsibilities for understanding to truly click. A recurring theme was gratitude for supportive partners who may not fully understand but show up anyway, whether by lifting them from the garden, driving them to appointments, or simply believing them when they say they're not the same person they were before.

A MyFibroTeam Member

Time.
Explaining a little at a time.
Speak in bulletts, not paragraphs.
Re-explain
Ask for help more often. Explain why.

June 1, 2017
A MyFibroTeam Member

My husband is wonderful as well,we have been dealing with this for years.i think sometimes he does get frustrated,he try's to be encouraging and get me motivated...but he will never be able to understand the depth of this disease the struggle of the daily pain,I just have to keep reminding him of why I can't do or can't be the way I used to be

June 1, 2017
A MyFibroTeam Member

If he's like me he may not say but understands. My wife always reminds me too. I only recently started reading info on these type of sites.

May 31, 2017
A MyFibroTeam Member

My husband ,while not really understanding the fibro part of my life he does see the path of destruction it leaves so he tries to help,I am an avid gardener and I said I didn't want one this year but he tilled up my garden and flower beds brought me to get plants and did the digging and I placed the plants in the ground and did my thing when I was done he came behind me and lifted me back to my feet and helped me move on...I felt such pain afterward but also a great sense of peace and accomplishment,so he pushes me forward but always lifts me up...I am blessed to have him

June 4, 2017
A MyFibroTeam Member

This is a great question. I, however, am dealing with someone whom has little patience or understanding for weakness. It makes feeling better emotionally much harder then turns to stress then pain. It parts us in many ways. It would be good to get tips on how to explain my invisible pain.

June 1, 2017

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