Yup we all have some that my not be as mobile as you are now I am going to build a sight that we can go to to help in each area for people like us that have chronic pain get donations of things some of us my need like soft blankets,loose clothes food whatever you may need in your area what does everyone think non profit

Agree with Andrew! Wish we could publish a list of doctors to avoid too!

If I understand you correctly, you are looking to build up a directory of not for profit organisations that can help people with fibro in their various areas, is that correct? If so, awesome idea.

I know Thomas Jefferson University has chronic pain doctors. I've had some great ones. But the best thing is they have a holistic center which maybe able to help give information to start this. Also with issues from my bladder cancer my urologist stated "I'm not vain and I don't have enough info on fibromyalgia, I want you to get a second opinion". To my surprise he recommended University of Pennsylvania and said they had better research on chronic pain diseases. I saw some of them and they were fabulous. There is nothing better to a patient with chronic pain to have someone listen to you and then ask questions related to your physical complaints. They maybe able to give info to get this kind of forum up and running.

A new group has just started in swadlincote, south Derbyshire. The first meet was last Thursday at sharpes pottery if anyone is interested. I haven't been yet but definitely want to try it. X