Yes yes yes hands feet legs and arms I really thought it was me !!! Thank you xx

Oh my word you have no idea how good it is to read this I thought I was loosing the plot when I say my body starts the day normal by lunch I have to get changed into loose clothes as I feel I have swollen double in size and if im feeling more anxious I feel so small and tiny like a child in a large room it's a strange feeling. Xx

It's taken me weeks to think of how to word it so I didn't sound mad lol. It's a good job we all have a good sense of humour with this crazy illness x

Many days when I feel like I have swollen to triple my size, but obviously not. Rarer for me to feel small, but I have had that sensation in ages, but do know what you are describing. Xx

Thank you for answering and glad I'm not the only one lol. I did begin to wonder. I was sat there today feeling like a giant in a room talking with other thinking am I growing. Expecting any minute to burst though the ceiling door and walls lol. Always reassuring knowing other experience theses weird goings on, and that we had to put up with them, may we all have more skinny days lol x