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What can I tell people who mean the world to me when they tell me "I get tired too" "just push through it, it's just fatigue" "you can't blame fibro for everything"
How can you explain to them it is never JUST fatigue and the tired they feel is not the tired we feel without sounding like you are pitying yourself?
I wish I could recall where I found the resource--I think it was in a Pain Management Magazine--that explained fibromyalgia better than anything I've read elsewhere, including online. I photocopied it for my therapist and my family. When they first read it they nodded and told me that they now "get it'. That was a while ago. I don't think they 'get it' any more. In other words, you can be a broken record trying to explain to people what you feel, how you feel, how you wish you felt, etc. They may 'get it' for a while, or say they do. But only if someone 'has it' will they truly 'get it'. Patience is a virtue, so we must practice that in our spare time, which we plenty of since we apparently are just tired and lazy all the time. (Sorry if I sound bitter. I'm having a bad day.) Hugs and best wishes to you and all my dear warriors!
To me, the fatigue is like a blanket. It covers everything and it is too heavy to kick off. When the blanket is on me, I must sleep. My close people know that if I tell them it is a blanket day, they text only.
@A MyFibroTeam Member I know how hard it is to get people to understand and believe all that FM and Chronic Fatigue does to us. I could sleep all day and all night and I would still be very tired. I tell them that and also that I don't control FM, it controls me!!! They would not be asking these questions if we had cancer or another disease. People think they have to see it with their own eyes to believe. I've had FM and Chronic Fatigue about 15 yrs. I've gotten to the point that I don't even care what people think or say. I get out of the house for appointments, eat out, or maybe the grocery store. Any one of those things will put me back to the couch. I'm trying to make myself not even think about what needs to be done. I like what Michelle said by turning ourselves inside out so people would understand and see what it is doing to us. Hugs
John 3:16
@A MyFibroTeam Member they will never understand. And anyway are they even asking you why? Do they want to understand? I've found that most of the time when people make comments about my fatigue they are just frustrated that you can't do what they want you to do. So it's not about understanding your condition but about fulfilling their expectations. I don't give explanations anymore. It is what it is!
I am at bank in line, falling asleep. Ugh! lol. I would tell them that the nerves throughout your body are always in overdrive and that's why you get fatigued much quicker than others. And, that the pain wears you out too, because your body is always working overtime to heal itself. And, then, if they don't accept that, we'll quite frankly it's okay. You know it's real because you experience it. If you're a prayer, you could pray that they would at least try to understand, even though it's hard when you don't have fibro & fatigue. To them you look fine, but God knows your true heart and body and how you feel...and He does understand. And, we understand here! I have family members that don't get it either....and they might not ever. But, I just rest in the fact that God knows, you all know and support me, my 2 closest friends support me and my hubby and children do. I'll send up a prayer for your situation now. Hugs to you & hang in there! 💕💕
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