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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Lacey, WA

http://www.11alive.com/mb/news/childhood-kissin...

Check this article out. It may all be due to the Epstein Barr Virus also known as 'Mono'. Get tested and see if its your underlying condition that is causing the issues.

December 14, 2016 (edited)
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Answer Summary

Members opened up about their experiences with mononucleosis and the Epstein-Barr virus, with several sharing that they had mono before being... Read more

Members opened up about their experiences with mononucleosis and the Epstein-Barr virus, with several sharing that they had mono before being diagnosed with fibromyalgia or other serious conditions like Guillain-Barré Syndrome. Many community members described a variety of potential triggers for fibromyalgia, including viral infections like mono or the flu, car accidents, Lyme disease, emotional trauma, and chronic stress, with one member noting that about 90% of people contract the virus in their lifetime, but only 10% show symptoms. A recurring theme was curiosity about whether antiviral therapy could provide relief and recognition that the virus may remain dormant in the body long after the initial infection, potentially affecting health in ways that are still being understood.

A MyFibroTeam Member

Yes. It almost landed me in the ER due to my throat closing. Now I have deactivated ebv attacking my CNS.

April 8, 2018
A MyFibroTeam Member

I had mono right before senior high school year, secondary throat infection and anemia that winter. I almost didn't graduate, for absenteeism.

It's one of the contributing factors to this condition-I do believe-plus emotional issues, depression, trauma, injuries, chronic stress.

June 23, 2017
A MyFibroTeam Member

Yes I had mono (Epstein Barre virus) when I was 19. I had been in northern Canada at a lodge and had many mosquito bites. When I got home, I developed a fever of 103 and was taken to hospital. Within a couple of weeks they did a trakeostomy (hole in the throat) and put me on a respirator. I was later diagnosed with Guillain Barre Syndrome and became completely paralysed. I learned to walk again and was in hospital for 4 mo. I recovered quickly after that and was married when I was 22.

December 18, 2016
A MyFibroTeam Member

My uncle recently died from GBS. After getting a flu shot. Took a year. So sorry to hear your struggles. Keep strong.

December 17, 2016
A MyFibroTeam Member

I had the Epstein Barre virus before I became paralysed with Gullain Barre Syndrome when I was 19. I was on a respirator for two weeks and then had to learn to walk again.I was in hospital for 4 mo. It's not supposed to be hereditary, but my daughter also had GBS when she was 23. Both of us recovered but both of us now have Fibromyalgia. My 18 year old granddaughter has it too and suffers with a lot of pain.

December 17, 2016

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