I've found this too...I put off getting a diagnosis for fear this would happen...I asked the question on another forum and they said it wouldn't happen...
I used to ignore the pain and push through...this worked...now (after diagnosis) I'm more aware of it. I'm at a total loss as to how much to "listen" to it...what do I do once I've heard it other than feel rubbish? or do I try and continue ignoring it and pushing through?...although I'm finding that impossible. So frudtrsting :(

You are so right!

I had the same experience. I had a major flare soon after I was officially diagnosed but I think some of that was due to rapid changes in my medication and just not knowing how to balance my health and school. I ended up taking the semester off of college to calm down the flare and learn my symptoms. I too feel guilty for complaining sometimes, especially around my friends who don't see it everyday and fully understand the condition.

It wasn't like that for me. I have always been in pain because of other issues. I was glad to have a diagnosis and to get meds for the muscle pain. It took me a long time to realize the difference between bone pain and muscle pain. You do need to do some type of exercise as that will help to keep you going and maybe not focus on the pain.

What you said is so true. We take one day at a time.