Does Anyone Have So Many Diagnosis That They Start To Second Guess The Diagnosis Given? | MyFibroTeam

Connect with others who understand.

sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Does Anyone Have So Many Diagnosis That They Start To Second Guess The Diagnosis Given?
A MyFibroTeam Member asked a question 💭

Do you wonder why you keep going to the doctor just to repeat your symptoms and pain over and over again? Do you question why the doctor doesn't seem to hear your pain? They give you meds for the same pains as if that pain cannot be fixed. do you wonder why they aren't taking other measures to fix the problem? Why are you in all this pain if all of your tests come back normal/good/great? This question is not limited to Fibro. So please share your story.

posted November 2, 2016
•
View reactions
A MyFibroTeam Member

I've found that recently me trips to the doctors end up with an increase of pain medication, and a sympathetic ear, if not empathetic. It has come down to me booking another appointment because just by chance I met a woman who has fibro and knows of a great programme in out area. So, I'm trying to get referred. I wish doctors knew of local programmes that could help with our situation rather than, like me, finding out by pure luck. I do get sick of complaining, I do get sick of meds, (21 pills a day and I know that's not much compared to some), and I do get sick of being told there is no explanation. I advocate for myself, but it is exhausting especially on top of the conditions I have. More days are in bed, the last three have been 10's today is an 8, and I'm sick of being sick. Fibro, CFS/ ME, IBS, the acronyms are endless, but true comfort seems to be a medical mystery. I often wonder if doctors of chronic pain sufferer's get frustrated by their own lack of understanding and ability to assist. Gentle hugs to all xx

posted November 3, 2016
A MyFibroTeam Member

Any time one has a chronic disease curable nor not I think it is human nature to keep looking for answers. I have posted before in regards to this. Please go to the pin board area and see the graphic about the stages of grief. I believe it applies to chronic illness. We all have lost something from Fibromyalgia. Also it is part of human nature to have hope.
So looking for answers is our way having hope, for what seems like a hopeless situation. As for me I have chosen to have good in each day, by stay as positive and up beat as possible.
Also please remember we all have different levels of pain. Also see Fibromyalgia pain charts in pin board area. Food for thought may everyone have the best day possible in a the least amount of pain possible!

posted November 3, 2016
A MyFibroTeam Member

I understand the frustration that we 'look good on paper from our tests'( have heard that one too for over 30 yrs 🙄). Eventually it made sense to me because fibro can't be found in any blood work,xray,mri,catscan etc. and that's the starting point for doctors to prescribe medications. In a way, now that I look back, I am shocked they actually named it, started research and prescribed meds. As far as I know this is the only physical health problem,disorder,disease that doesn't show up on any conventional medical test. The fact that 5 million people in the USA alone( not counting world-wide) have it today- made the medical community stand up & take this seriously.

posted November 4, 2016
A MyFibroTeam Member

This pisses me off so bad!! Yes, that's all I hear these days from the many doctors including specialists telling me well your tests shows you are fine. Really? The only doctor that said I had a not so good test is the ophthalmologist. Got astigmatism and cataracts on both eyes. He wanted to do surgery but I said not now. My insurance said they would pay only 25.00 for my new prescription of trifocal glasses! Wow! Hope everyone get a answer for all the pain we endure. Soft Hugs!

posted November 3, 2016
A MyFibroTeam Member

I have been to so many doctors because of so many different things going on. Most of them just piss me off. On November 8th I'm going to see a functional doctor (you would think they would all be functional lol) I never heard of them until recently, they are hard to find and if you do find one it hard to get an appointment. I'm excited to see her and I hope she can help me

posted November 2, 2016

Related content

View All
Is There A Particular Style Of Yoga That Has Helped Anyone Here?
A MyFibroTeam Member asked a question 💭
Does Anyone Else Have Mood Swings?
A MyFibroTeam Member asked a question 💭
I'm Having Horrible Neck Pain With Severe Limited Range Of Motion. Any Suggestions For Relief?
A MyFibroTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in