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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Rugby, UK

I knew i had it for a long time with having friends that have it i could relate to everything they was going through pain wise, fatigue, not sleeping, ect ect ect... it took me a long time to get a dr that would listen to me as was being fobbed off by others.!!! I even had a friend ask me if i had it due to how i was.!!

October 19, 2016
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Answer Summary

Members shared deeply personal stories about their long journey to a fibromyalgia diagnosis, with many describing years of debilitating pain,... Read more

Members shared deeply personal stories about their long journey to a fibromyalgia diagnosis, with many describing years of debilitating pain, exhaustion, and being dismissed by doctors who insisted nothing was wrong despite their suffering. Several members found validation through friends who recognized their symptoms, medical specialists who finally listened and performed pressure point tests, or life-altering moments like being unable to walk across a room or get up from the floor. A recurring theme was the profound relief of finally having a name for their pain after being told for so long that they were fine, even as some members still struggle to fully accept the diagnosis or understand the illness.

A MyFibroTeam Member

I didn't know what I had. I went to many doctors. I had the worst flu I had ever had. I couldn't walk across the floor. Most doctors didn't believe I was really ill because the tests all came back negative. Finally after many tests, one doctor's said, I BELIEVE YOU. I cried. He said I am not sure what you have yet but I truely believe you are ill. He finally sent me to a specialist doctor who confirmed I had fibromyalgia. It was so amazing that someone finally believed me and found the problem.

October 20, 2016
A MyFibroTeam Member

My friends kept telling me but I didn't think I did. I was going to see a rheumatologist on the 22nd April 2016, and I watched a programme on TV the night before about medical mysterys, the guy on there was describing his symptoms and problems. He could have been talking about me, the way it all started, the fact he got one symptom after another, the medication he tried and that didn't help. I didn't say anything while watching it with my mum, and at the end she turned to me and said so tomorrow you'll finally be diagnosed after 14 months of suffering. The next day I was.

October 19, 2016
A MyFibroTeam Member

Like you I've suffered with pains widespread for a long time for well over a year if not longer, but Drs kept fobbing me off all the time had telling me to go for a brisk walk :-/ thankfully i got in to see this one specific dr he's so hard to see because he's such a good dr and he diagnosed me told him i sick of talking to myself with nobody listening to me

October 20, 2016
A MyFibroTeam Member

My arms stated hurting thought I pulled a muscle. When the pain was worse instead of better I made an appointment with my doctor and after asking me some questions she said I had Fibro. However I may have it earlier and thought it was something else especially since I already had my arthritis.

October 20, 2016
A MyFibroTeam Member

I have recently been diagnosed always felt tired pain constant in my legs caused by a crushed vertebrae in my back causing sciatica but now pain has spread to every part of my body so have seen rheumatologist and has diagnosed another to add to my list of many health problems seems to have got worse since start of menopause.

October 19, 2016

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