What bits of "advice" do you wish people would stop telling you?

What bits of "advice" do you wish people would stop telling you?

A MyFibroTeam Member said:

I don't think it has anything to do with God. It is not a punishment, it is a medical condition. This is not a question of good versus evil.

We all have to work hard to find things that help us, and these things will be different for everyone. If prayer helps, pray. If a certain medication helps, take it. TRY to move, however small that movement may be. Don't listen to people giving advice unless they HAVE fibro, if they don't they really don't have a clue, and that includes many doctors.

posted almost 3 years ago
A MyFibroTeam Member said:

All the research says GENTLE exercise. I started meditative TaiChi. I can sit whenever I want and just do what I can. I can now get through the first 30 moves, gently in my own way, before sitting. The sense of achievement is wonderful. I have an amazingly understanding support husband. We both do it

posted almost 3 years ago
A MyFibroTeam Member said:

Yes we would if we could ☹️ I think we all keep learning things about this terrible disease. It has to many dam symptoms to even remember 😡 it’s like a different spot or area of the body causing us pain pain and more pain. It never seems to end. We get a good day or two and try to play catch up...ya right just to knock us back down again!😡 Therefore I have learned over a decade is to “Know your limit and stay within it”. My 93 year young friend has been battling with this for over 70 years she tells me we have to pace ourselves. 🤗

posted over 1 year ago
A MyFibroTeam Member said:

It hurts worse when it is your family. That they are the people that are doubting you the most.

posted almost 3 years ago
A MyFibroTeam Member said:

I was speechless when my mother said to me, Oh will you just stop focusing on it.....its not going to last forever!!! (As if I pulled a muscle in my back). I was going to gather my wits and try again to explain FM to her, but my voice got lost in my throat and I decided it wasn't even worth the energy I would have to exert to go over Fibromyalgia 101 again. Nor the stress that turns to anxiety after having to say it allnand then get all her medical advice on how to cure it. Apple cider vinegar? Really? She clips every newspaper article she reads on it, like from people who write in to the local paper to ask the editorial doctor for his advice. AS IF AFTER 33 YRS WITH THIS CRAP I KNOW NOTHING ABOUT IT. Let's face it, we could all write a book about it based on our journey with FM....but nobody would read it.

posted almost 3 years ago
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