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A MyFibroTeam Member asked a question 💭
London, UK

Does anyone have either PLMD or RLS?

If so any tips for coping

I have PLMD and can't get a decent nights sleep

September 23, 2016
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Answer Summary

Members shared their experiences managing PLMD and RLS, with many finding relief through prescription medications like Pramipexole,... Read more

Members shared their experiences managing PLMD and RLS, with many finding relief through prescription medications like Pramipexole, Ropinirole, and Amitriptyline, which one member described as a godsend after their rheumatologist increased the dose. Several members recommended homeopathic options such as Magnilife and Hylands brands, which are affordable and available at drugstores, with one nurse practitioner noting they work without side effects when taken more frequently. A recurring theme was the value of lifestyle changes alongside medication, including eliminating caffeine and food allergens, which helped one member achieve 7 to 10 hours of uninterrupted sleep without needing sleep aids.

A MyFibroTeam Member

Ask your doctor for amitriptylene, I haven't slept this good in years. A friend told me to mention it so I started on one a night then my new rheumatologist raised it to five a night and it is a godsend!!!

September 23, 2016
A MyFibroTeam Member

Magnilife and Hylands brands are the 2 most commonly used..CVS, Healthfood stores also, some of the the large Drugstores carry these also, cost $9 for 50 , $14 for 100. Incidentally, I quit all caffineated products and now need nothing for sleep...Like 7-10 hrs/ night. No leg or other movements. Also do not eat any foods I am allergic to (milk, wheat, corn, soy beef etc.). I take only acetaminophen for the vague low back pain 1-2x/wk. and that's all I need. My only medication for FM &CFS is guaifenisin cheap and OTC from MD in SF who prescribes the Dr, St. Albans protocol.

October 25, 2016
A MyFibroTeam Member

I had the same problem, nothing really worked.Then I saw a homeopathic product at the drugstore CVS. Tiny white tablets, not patent medicine...just simple chemical molecules for specific problems. They are cheap compared to reg pills and they work without any side effects. You have to take them more frequently, but way worth it. I am a family nurse practitioner and I use these with patients also, esp. when nothing else works. I have a homeopathic practitioner friend who only uses these for his patients, and he is really busy. these products have been around for more than 300yrs. I'm surprised that no one else has spoken of them.

September 23, 2016
A MyFibroTeam Member

Periodic limb movement disorder and restless leg syndrome

September 26, 2016
A MyFibroTeam Member

Can you tell us the name of these?

September 25, 2016

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