I find myself avoiding going out more and more. I associate movement with pain, although I'm trying to change this.
I have become more isolated and find it hard to summon up the effort to even get dressed.
I try to go out but it's exhausting and debilitating. I personally find it easier not to talk about just how badly I feel, because I sound like I'm moaning and people don't actually want to hear it. The only people that get it are those that have it.
This is not the life I envisioned and it's lonely too. I'm just trying to find ways of occupying my mind in a purposeful way.
Somedays, even when there's nothing in to eat, I just stay in and go without food because it's just too much effort to move when it hurts, yet I know not moving makes it worse.
I'm becoming more and more detached from the world, but that's not a bad thing, because the world doesn't get it and I'm sick of being judged, analysed and given crap advice from people who think its all in my head.

Yes, home is my safe haven. No one to explain things to, to answer questions to to try and fake it for. I can be me.

@A MyFibroTeam Member, my heart goes out to you. The first few years, I was finding my way with what I could and could not do. After continuously finding myself focusing on what I could not do, I felt worse. The pain worsened. I found that this was totally a lesson in acceptance.

So! I decided to begin to think differently. I focused on more positive thoughts and played up what I COULD do. If my friends wanted to go dancing, I would say, "I can go to the movies or go out to eat." I would try to be totally on positive thoughts.

Now, it is easier, because the brainwaves are firing on the opposite of negative. I feel better, even on the bad days. I've been working with FM for over 50 years. I was not diagnosed until I was 45. I am now 58. When I place attention on the hear and now, it feels a little easier each time.

I hope this helps at least a little.

Good luck to you, my friend.
~Kat

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A MyFibro...

I absolutely never want to leave my home. I don't know why. I find myself avoiding it as much as possible. I even reschedule doctor's appointments just so I don't have to leave. I am not a social person and I believe this is because no one I am near understands my condition and just think I have a low tolerance for pain or am just lazy. No one really knows me anymore. I feel safe and understood at home-my safe haven. I am also always so tired that the thought of going somewhere is exhausting.

I'm so glad to hear it isn't just me! I love to ride my horses and clean/organize my barn. It takes every ounce of effort to get my butt out there. Once I do get outside I enjoy it. Some days I don't make it out. I feel guilty about this because I have everything an equestrian would want...nice barn, indoor arena, nice horses. But in the house I will sit. I finally got rid of Netflix and other streaming devices. It gave me too many TV options and I would end up Bing watching all day. It is a daily effort and it makes me feel better knowing I'm not the only one.