So far I have only been diagnosed with fibro. I just have a feeling there is something more going on. How do you determine if it's fibro or cfs or both when they are so similar? I have also,been wondering about ms or myesthenia Gravis (my brother has this),
Well MS is easier to check for where as fibro is so complicated because no actual test for it. Many people have fibro without the cfs but in time the cfs comes to you. When was suffering from fibro, I didn't get the cfs until about a year after. Impossible to mistake cfs, its as if someone has sucked all your energy from your body. When I was suffering from cfs I was in bed 17-20 hrs a day. My bathroom was 10 steps away from me and getting to it was exhausting. Your so tired but its almost impossible to sleep because the pain of fibro was never ending. Comfort was something you never feel when you have fibro and cfs.
Yes have had both diagnosed. One week ago was discharged from a 3 week stay in hospital (colo-rectal surgical ward) in UK and now have several other new diagnoses. I wonder if they are fibromyalgia syndrome and/or CFS/me/scid related. Saw 6 surgeons all of whom have refused to operate, so far anyway, due to having fibro specifically. Have been extremely ill for 2 years. However, am now being trialled on a new medication which will hopefully help with the added excrutiating abdominal pain and paralysis of my large intestine.