Thank you for the information, I have always looked at raynaud's in the past because it's mainly my hands and feet. They are always white in colour unless they get really cold then they turn purple with orange dots on think I'll see my doctor about it. My feet are always (like blocks of ice) as my partner calls them. I can put a hot water bottle on them for half an hour and they are still cold to touch.

Yes, temperature regulating if very difficult for the brain because when our nerves continuous fire all of the time it has a hard time to understand the input of cold and heat. Pain along with breathing are primary sensor response that the brain is hard wired to report immediately! That is why when one is experiencing pain you might hear someone say take some slow deep breaths it is way of short circuiting the pain response. The problem with doing this is it works for awhile then the brain figures out what we are doing! The heat and cold responses therefore get placed lower on the incoming board of things to deal with unless the body feels extreme cold and hot. There are some who have Raynaud's which is the extremities hands and feet if I remember correctly. Others who may have this can a dress this. Hope this helped. I had this a lot when I need newly diagnosed and now get it with changes in weather.

Hi Sam hope you are ok. Sorry to hear you're having difficulty with temperatures. Unfortunately this is one of the things we notice a lot more. I've always been a cold blooded person that feels the cold even in a slight breeze when everyone else is fine and warm enough. Lately though, the same as you, my body seems to be very sporadic with hot and cold flashes. The only thing I can suggest is that you layer up with you're clothes. Quite often I'll wear more than necessary for the weather or circumstance, and then I can take something off if I start to boil. Or I can put layers back on again if I start to freeze. It's s pain in the bum but that's how I've tried to deal with the temperature changes. I've not discovered any remedies as such it's just a case of trial and error. I hope u find something that helps Hun as I know how uncomfortable it can be! All the best, sending gentle hugs x

yes, oh my gosh yes! Whats ever weirder about it is its usually about the same time of day. I"ll get really cold around 4 or 5 pm which lasts a couple hours and then around 9 10 pm Im so hot I feel like Im going to com bust.

Yes I am only ever too hot or too cold, I can never regulate mybody temperature, it is one of the most annoying symptoms of fibro I find, apart from the constant sweating regardless of weather I am boiling or freezing