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Has anyone been told it may not be fibromyalgia if you don't have tender points in hips? My new doc told me this he is a Rheumato with a fellowship. He said I may have another disease I have neck shoulder and knee pain
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Members rallied around someone whose rheumatologist questioned their fibromyalgia diagnosis due to the absence of hip tender points, with the... Read more
Everybodys tenderpoints are different and not everybody has all 18 I do but not every single day so denying that its fibromyalgia for not having one tender point is stupid
I have the hip and knee pain a lot worse now than I did ,, and my doc said it was fibro I ask him if I could get to where I can't walk and he said you will think you can't for the pain!!!!
Thank you lea Marie I have had mri over most of my body All major joints except hips as I never have hip pain The Mir findings are negative but I have been scoped on shoulders and knees and they find arthritis worn cartilage and the joint to be red so I don't know what it is I've had repeated blood tests all negative except anemia and vitamin d deficiency
@A MyFibroTeam Member I agree with you. I have all 18 tender points but I don't hurt in all 18 spots every day. The pain jumps around. Some good days, where I want to be active and other bad days where I feel like I have the flu and just want to rest all day. My family is coming around and understanding more. I'm thankful for that. Just take one day at a time...that's all we can do.
@A MyFibroTeam Member
Walking becomes more and more difficult. After 7 years of successful treatment I need to use my electric scooter when I leave the house. Most of the other symptoms are under control but the coordination and stamina for walking have not recovered. I'm glad I did all of my backpacking when I was younger.
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