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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
London, UK

Hi everybody, I would like to know more about PIP, had anyone applied for it? Would I be entitled to it? I still work part time although I have been off sick for 2 months now. I am struggling with the cost of all my medications. I was wondering if there would be some help. Could you please let me know about your experiences regarding applying for one. Thanks!

May 26, 2016
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Answer Summary

Members shared guidance on applying for PIP (Personal Independence Payment) in the UK, with the consensus being that eligibility depends on... Read more

Members shared guidance on applying for PIP (Personal Independence Payment) in the UK, with the consensus being that eligibility depends on how a condition affects daily living and mobility rather than the diagnosis itself, though the process is notoriously difficult and often requires strategic form completion. Several members strongly recommended using benefitsandwork.co.uk for detailed guidance on maximizing points by properly describing adaptations and limitations during flare-ups, and suggested seeking help from Citizens Advice Bureau benefits advisers to navigate the complex application. A recurring theme was frustration with the challenging qualification criteria and assessment process, balanced with encouragement to apply anyway and to consider cost-saving options like the annual prescription certificate for those spending heavily on medications.

A MyFibroTeam Member

Thank you so much Jayfysh. This helps a lot.

May 26, 2016
A MyFibroTeam Member

Hi, you should apply for PIP

Two great sources of how to complete the forms to maximise your points for both care and mobility

The Citizens Advice Bureau. The usually have a benefits adviser to help with the forms

Also a website which I regularly recommend on here and have used myself successfully as has my daughter who also has Fibro

www.benefitsandwork.co.uk

It. Costs £16 for an annual subscription and will walk you through each question and how to properly answer to get highest point in relation to you condition

Makes u think of things you have had to adapt doing to be able to manage that you now take as normal which would get you points

Eg, I have had to adapt my wardrobe because of pains in hands have great difficulty with buttons and zips or need help to do up. Wear slip on or Velcro shoes because can't bend down to do up laces
Also don't think that you won't qualify for mobility.. You need to fill in the questions in this section with the details on how a flare affects you

The website helps you to understand how to answer and what to include that's important that you may not think is

There is also a forum where you can ask questions to other members with same condition and what they answered

They also have a detailed section on asking for reconsiderations and appeals if unsuccessful.. This usually happens because people only become aware of this site after they have sent the forms in

I hope this helps xx

May 26, 2016
A MyFibroTeam Member

The short answer is yes you can apply. PIP is about how your condition affects you and not what you have. Therefore if you have issues with day to day living or mobility then you can apply and you will get it or not depending on your score. The score is done by how much you are effected in the two catagories.
You also mentioned that your medication is costing you a lot of money, so I assume you are paying for your items each time you get a prescription. If this is the case I would suggest that you apply for an annual prescription charges certificate that costs £104 per year. This can be paid monthly over 10 months at £10.40 per month. If you get this you only pay for the certificate and you can have as many items as you need. I have one and get 13 items a month and more if I need them all for £10.40 a month so you should apply. I hope this helps and please feel free to ask any questions if you need more info.

May 26, 2016
A MyFibroTeam Member

I do know you have to pass certain tests for pip, such as how far you can walk, how well can you take care of yourself and stuff like that, I.e bathing, cooking jst general everyday things,

May 30, 2016
A MyFibroTeam Member

Best of luck with that, I applied for bus pass paid 24 pound for doctors letter, but got turned down as not enough medical evidence, so money I cant realy afford gone down the swanee river!

May 30, 2016

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