Right I would like to know how people feel about having a relationship with a non-sufferer. I have had a relationship with a fibromyalgia sufferer who was a friend at first and we fell in love. I saw bad days and helped her through them etc. But within a 24hr space of bring all loving to not wanting me around it has left me wondering is this a typical flare up with sufferer's? (We was together for a mth)
Being an outsider its one thing I can't look up because feeling's are a… read more
It's a lot to do with the depression that comes with Fibro. I find I want to shut down when I simply feel too low to cope with someone else's emotions.
I've been married for 23 years and with my Hubbie for 26years! Over the last 10 years my health has not been great and it's taken a lot of work on both sides to make it work! Now I've been diagnosed with Fibro it's another hurdle - one we step over together. I have been struggling myself to process this condition and how it has already changed things but I'm trying really hard to be united in what we do! I have been snappy and tearful and forgetful and sometimes I have to say 'I love you but would like some me time' - during this time I can be myself and not have to put on a brave face! I don't think that Fibro should define you - your still in there and your still worth getting to know even all the hidden extra's😉
I have had days where I just want to be left alone and when I'm in worse pain I have found myself not wanting even a gentle hug from my wonderful boyfriend who just wants to help. Especially lately I have noticed I'm treating our relationship more as a platonic friendship than as lovers. Not because I don't love him but because I am in pain and it just takes so much energy to do otherwise right now.
&JacquelineGan I sincerely hope you have family around you, I know it's hard for them but like it or not Fibro is part of the family whether they like it or not! I'm so sorry your so poorly you can't cope with relationships - I hope this changes for you real soon😞
Sending gentle hugs and my prayers your way xx
@A MyFibroTeam Member
It's so heart warming to here the love you and your husband have for one another and there by your side for better or for worse☺️ My husband and I do a lot of compromising so that we both enjoy our life together but also have our own time - if that means me tucked up in bed with a magazine and him nip to the local for a pint then so be it! I hope your marriage and love continue to grow and that you still find things out about each other that surprise you and make them love you even more💕 Your both incredibly lucky to have found your soul mate